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  • PiCTure - Prostate Cancer Treatment: the effect on health-related quality-of-life and other patient-reported outcomes | National Cancer Registry Ireland
    Frances Drummond Mr Eamonn O Leary Prof Linda Sharp Collaborators co investigators Dr Anna Gavin Northern Ireland Cancer Registry Dr Heather Kinnear Northern Ireland Cancer Registry Funding source Health Research Board Prostate Cancer Charity UK The PiCTure study is addressing the important question of the effect on men s health related quality of life of PSA testing prostate biopsy and prostate cancer diagnosis treatment and follow up Prostate cancer is the most commonly diagnosed cancer in men in Ireland Incidence rates have been rising faster than those for any other cancer largely as a result of widespread PSA testing A major concern of PSA testing is that it results in substantial over diagnosis of prostate cancer and consequently over treatment In addition most prostate cancer treatments are associated with significant risk of side effects The PiCTure study has recruited more than 3 500 prostate cancer survivors from Northern Ireland and the Republic of Ireland Data has been collected on a range of patient reported outcomes including treatment after effects such as impotence incontinence and fatigue health related quality of life functional status psychological wellbeing utility to inform assessment of cost effectiveness of PSA testing and out of pocket expenses The study team are now collecting data from men undergoing prostatic biopsy in various centres across Ireland to assess whether this impacts on men s health related quality of life and psychological wellbeing Better understanding of the impact of prostate cancer on men s lives may lead to the development of services to better support men Related news Psychological and physical health healthcare utilisation associated with whether men have a prostate specific antigen PSA test Related papers Prostate specific antigen testing is associated with men s psychological and physical health and their healthcare utilisation in a nationally representative sample a cross

    Original URL path: http://www.ncri.ie/research/projects/picture-prostate-cancer-treatment-effect-health-related-quality-life-and-other (2014-07-21)
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  • PiCTure 2 - Men's experiences of prostate cancer care in Ireland | National Cancer Registry Ireland
    partners Research team Status Ongoing Cancer s Prostate Research theme s Health services research Research workstream s Patterns determinants and experiences of cancer treatment Related staff Ms Marita Hennessy former staff Dr Frances Drummond Dr Harry Comber Retired Mr Eamonn O Leary Prof Linda Sharp Funding source Irish Cancer Society The PiCTure 2 study is investigating the care experiences of men recently diagnosed with prostate cancer in Ireland from initial presentation at the GP and or Prostate Specific Antigen PSA testing through further investigations treatment decision making treatment and monitoring follow up check ups It will provide detailed insight into their experiences and identify whether any service developments are needed to ensure that all men have the best care experience possible Patient experience is increasingly recognised as an important measure of quality of care Internationally there have been many studies of cancer patients experiences but in Ireland this area is under researched Studies in other countries have shown that cancer patients who report higher levels of satisfaction with their cancer care also report a higher quality of life and lower levels of anxiety and depression in addition they are more likely to cooperate with treatment which ultimately leads to better clinical outcomes PiCTure 2 involves a national postal survey assessing specific domains of care including patient preferences support information continuity and transition coordination of care and access to care The survey was developed through cognitive interviewing techniques and dispatched in early 2013 to men recently diagnosed with prostate cancer More than 1 500 completed questionnaires were received and data analysis is underway The PiCTure 2 findings will be important for men their families cancer support organisations healthcare professionals and those who plan and provide cancer services Related presentations Prostate cancer patients perspectives on quality of care their care experiences health

    Original URL path: http://www.ncri.ie/research/projects/picture-2-mens-experiences-prostate-cancer-care-ireland (2014-07-21)
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  • Pleural mesothelioma incidence and survival | National Cancer Registry Ireland
    it Using interpreting our data Cancer information Troubleshooting Pleural mesothelioma incidence and survival Home Research Research projects Pleural mesothelioma incidence and survival Research themes Descriptive epidemiology Health services research Aetiological research Research projects Research publications Research reports Scientific papers Presentations Research partners Research team Status Complete Cancer s Lung Mesothelioma Pleura Research theme s Descriptive epidemiology Health services research Research workstream s Cancer incidence treatment mortality surveillance Cancer survival Related staff Dr Sandra Deady Dr Paul Walsh Collaborators co investigators Department of Molecular Medicine Royal College of Surgeons in Ireland Education and Research Centre Beaumont Hospital Dublin 9 Funding source National Cancer Registry Ireland Malignant pleural mesothelioma MPM is a rare cancer most often associated with exposure to asbestos This study assesses incidence and survival based on all MPM cases reported since the establishment of the National Cancer Registry of Ireland World age adjusted incidence rates have been calculated based on the 362 MPM diagnoses during 1994 2010 and survival has been assessed for all cases diagnosed 1994 2009 with adequate follow up n 330 Cox models of observed all cause survival and equivalent generalized linear models of relative survival have been used to assess the effect of gender age

    Original URL path: http://www.ncri.ie/research/projects/pleural-mesothelioma-incidence-and-survival (2014-07-21)
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  • Smoking & survival in cancer | National Cancer Registry Ireland
    collect it Using interpreting our data Cancer information Troubleshooting Smoking survival in cancer Home Research Research projects Smoking survival in cancer Research themes Descriptive epidemiology Health services research Aetiological research Research projects Research publications Research reports Scientific papers Presentations Research partners Research team Status Ongoing Cancer s Head neck Oesophagus Research theme s Descriptive epidemiology Health services research Research workstream s Cancer survival Patterns determinants and experiences of cancer treatment Related staff Dr Joe McDevitt Prof Linda Sharp Collaborators co investigators Ms Anne Elie Carsin Centre for Research in Environmental Epidemiology CREAL Barcelona Funding source National Cancer Registry Ireland While smoking is probably the best known risk factor for various cancers there is less information on the effect of smoking on prognosis after cancer Studies in some cancer sites suggest that smokers may have lower rates of treatment response and poorer outcomes but most of these are small or based on selected clinical series Unlike most cancer registries the National Cancer Registry Ireland routinely collects information on smoking status at the time of diagnosis Using information on cause of death and other related prognostic factors we have set out to gauge the effect of smoking on survival time in a

    Original URL path: http://www.ncri.ie/research/projects/smoking-survival-cancer (2014-07-21)
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  • Content relating to cancer 'Head & neck' | National Cancer Registry Ireland
    download Cancer rates mapped Request data Publications Annual financial reports Cancer trends projections Statistical reports Cancer atlases Research publications Research reports Scientific papers Presentations All Ireland cancer statistics Infographics Research Research themes Descriptive epidemiology Health services research Aetiological research Research projects Research publications Research reports Scientific papers Presentations Research partners Research team FAQs All FAQs FAQs about us About our data how we collect it Using interpreting our data Cancer information Troubleshooting What we do Content relating to cancer Head neck Content relating to cancer Head neck News article Title Cancers Tags Quality of life in urban and rural settings Head neck Rural Urban Quality of Life Cancer survivors Map Title Cancers Mouth and pharynx 1994 2002 2003 2011 annual average Head neck Mouth and pharynx 1994 2011 annual average Head neck Presentation Title Cancers Surgery type and length of stay in head and neck cancer patients a population based study Head neck Smoking at diagnosis is an independent prognostic factor for survival in head and neck cancer findings from a large population based study Head neck Using registry data to estimate productivity losses due to premature mortality and reduced workforce participation following head and neck cancer Head neck Setting

    Original URL path: http://www.ncri.ie/cancers/head-neck (2014-07-21)
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  • SuN study - supportive care needs of survivors of head & neck cancer | National Cancer Registry Ireland
    Dr Eleanor O Sullivan Cork Dental School Hospital Funding source Health Research Board Cancer inflicts a formidable physical psychological and socio economic burden on patients their families and health care providers This is particularly true for head neck cancer which accounts for 600 000 new cases worldwide each year and over 200 000 deaths Research in other countries among people living with other types of cancer suggests that many have considerable ongoing needs for medical and non medical supportive care over their lifetime but that their needs are not being met by existing services To date there has been little research among head neck cancer survivors This study aims to undertake a comprehensive assessment of the unmet supportive care needs in head neck cancer survivors and investigate the concerns and recommendations of health professionals faced with their long term management We are using two complementary methods to investigate this complex topic 1 in depth face to face interviews with both health professionals providing supportive care to survivors of head neck cancer and head neck cancer survivors themselves and 2 a national postal questionnaire survey of survivors to quantify levels of unmet needs The in depth interviews focused on what types of supportive care needs survivors have whether these are being met the perceived barriers faced by both survivors of head neck cancer and by health professionals attempting to address survivors needs and any gaps limitations in current services The survey was completed by 583 head and neck cancer survivors from across Ireland and will allow us to find out what proportion of survivors of head neck cancer have unmet needs and who is at most risk Data collection from the project is complete and analysis is underway The findings will be important for survivors their families support organisations health professionals

    Original URL path: http://www.ncri.ie/research/projects/sun-study-supportive-care-needs-survivors-head-neck-cancer (2014-07-21)
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  • SuN Study 2 - supportive care needs of informal carers of survivors of head & neck cancer | National Cancer Registry Ireland
    cancer Home Research Research projects SuN Study 2 supportive care needs of informal ca Research themes Descriptive epidemiology Health services research Aetiological research Research projects Research publications Research reports Scientific papers Presentations Research partners Research team Status Ongoing Cancer s Head neck Research theme s Health services research Aetiological research Research workstream s Cancer survivorship Related staff Dr Myles Balfe Dr Aileen Timmons Prof Linda Sharp Collaborators co investigators Prof Phyllis Butow University of Sydney Dr Rachael Gooberman Hill University of Bristol Dr Eleanor O Sullivan Cork Dental School Hospital Funding source Health Research Board Cancer inflicts a formidable physical psychological and socio economic burden on patients their families and health care providers This is particularly true for head neck cancer which accounts for 600 000 new cases worldwide each year and over 200 000 deaths Research in other cancers suggests many survivors and their carers have considerable ongoing needs for medical and non medical support over the survivorship continuum but that these needs are not met by existing services This study aims to undertake a comprehensive assessment of the unmet needs of carers of patients with head neck cancer This study is in two parts The first part will involve a questionnaire survey of carers This survey will investigate what carers think of existing health and social services for carers in Ireland and also the psychological social and financial impact of caring The second part will involve in depth interviews with a subset of carers who took part in the survey Interviews with carers will cover the nature and type of the caregiver s social support needs and how these have evolved since the family member s head neck cancer diagnosis Our findings will be relevant for survivors carers support organisations health professionals and service planners providers They may

    Original URL path: http://www.ncri.ie/research/projects/sun-study-2-supportive-care-needs-informal-carers-survivors-head-neck-cancer (2014-07-21)
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  • TReat - Treatment Receipt in Elderly women diagnosed with cancer | National Cancer Registry Ireland
    theme s Descriptive epidemiology Health services research Research workstream s Patterns determinants and experiences of cancer treatment Related staff Dr Frances Drummond Dr Harry Comber Retired Prof Linda Sharp Collaborators co investigators Ms Lisa Costello Women s Health Council Dr Patricia Fitzpatrick University College Dublin Ms Geraldine Luddy Women s Health Council Funding source Department of Health Cancer is a disease of older people 55 of invasive cancers in women in Ireland are diagnosed in those aged 65 and older A report by the National Cancer Registry and Women s Health Council revealed that older women 65 and over diagnosed with cancer in Ireland during 1998 2001 were much less likely to receive cancer directed treatment than younger women This pattern was evident for every cancer investigated and almost every form of cancer directed treatment Since active treatment can be an important determinant of length of survival risk of recurrence and mortality these findings have serious implications for the outcomes of older cancer patients The reasons for the lower treatment rates in older cancer patients are not known and have been little researched Treatment may be less effective and toxicity worse in older patients In addition health status e g comorbidities and other adverse clinical factors may make treatment less clinically appropriate in older patients However these factors are unlikely to fully explain all of the disparity It is possible that clinicians may have different views and attitudes towards treatment and the benefits of treatment in older than in younger patients In addition older patients themselves have different preferences and beliefs regarding the value of treatment The project is investigating the reasons for the low rates of cancer related treatment in older women in Ireland using a mixed methods approach The study has focussed on three cancers colon breast and

    Original URL path: http://www.ncri.ie/research/projects/treat-treatment-receipt-elderly-women-diagnosed-cancer (2014-07-21)
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