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  • 5.12.2012 Todays budget and its impact on people with neurological conditions - New Web Site
    Centre Latest News NAI Campaigns Personal Stories Get Involved Press Political Support 5 12 2012 Todays budget and its impact on people with neurological conditions print version send to a friend share on facebook Todays budget represents a harsh series of cuts and increased charges which will impact significantly on people living with a neurological condition and their families Direct health and social protection cuts and charges include the respite care grant will be cut from 1 700 to 1375 per recipient tripling of prescription charges for medical card holders from 50 to 1 50 increase in the threshold of the drug payment scheme from 100 in 2010 to 144 in 2013 NAI welcomes the Government s decision to protect disability benefit at current levels and to provide 15m in free GP care for people with certain prescribed illnesses Committments to restore home help home care packages and personal assistant hours will be closely watched by NAI as these supports are critical to people with neurological conditions and their families Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and Newsletters Training Links Glossary Membership List of Members Becoming a Member

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/5-12-2012-todays-budget-and-its-impact-on-people-with-neurological-conditions-210 (2015-10-30)
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  • 3.12.2012 Report into Deep Brain Stimulation Published - New Web Site
    be used for other conditions Currently in Ireland people are referred to DBS centres abroad for assessment surgery and follow up care The Irish health service funds this treatment under the European E11 Treatment Abroad scheme TAS Since 1997 it is estimated that over 130 adults have been funded to receive DBS care through this mechanism The disadvantages of the scheme are that individual patients incur travel costs and significant inconvenience associated with receiving a procedure and follow up care in another country People who are otherwise eligible may not be able to receive the treatment due to the costs and burden associated with travel An expert advisory group and an evaluation team from HIQA undertook the following research a review of the scientific literature to summarise the available clinical evidence on the effectiveness of DBS technology and to identify guidelines and service standards for its provision in other healthcare systems data were obtained from a range of Irish and international experts including dossiers submitted by commercial companies manufacturing DBS devices the likely costs and budget impact over five years for the Irish healthcare system was assessed The report concludes that a national DBS service will cost the HSE more per patient treated 20 900 more over ten years and result in an increase in the overall cost of the service 1 84 million more over five years compared to the estimated 4 9 million to treat the same number of patients abroad using the current scheme The report points out that a key factor in this analysis is the impact of private health insurance The report recognises the current inconvenience difficulty and distress for people having to travel overseas but also points the demands that a DBS service would place on already overstretched neurosurgical and neurology services The NAI

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/3-12-2012-report-into-deep-brain-stimulation-published (2015-10-30)
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  • 30.11.2012 Call to protect people with neurological conditions in Budget 2013 - New Web Site
    proposal to increase in next week s budget Cuts to home care supports continue to impact significantly on people with neurological conditions In addition people with a neurological disability face significant increases in the cost of living due to the introduction of a range of charges and levies including the universal social charge and the proposed property tax The Neurological Alliance of Ireland first national survey of carers of people with a neurological condition earlier this year found that over one third reported a significant impact of government cutbacks on their ability to care for a person with a neurological condition We have to pay privately for the therapies physiotherapy speech and language therapy he needs with cuts in child benefit and more and more charges how can we do that Family carer Chris Macey Chair of NAI notes I m not sure if Government realise just how vulnerable people with a neurological disability are They are critically dependent on the support provided by not for profit organisations Ireland s neurological care services are drastically underdeveloped Recent figures from the HSE showed over 5000 people waiting for over a year to see a neurologist The message has to be clear once they get a diagnosis there is very little available to them and what is available is being steadily undermined Cutting funding for not for profit organisations has a disproportionate impact on people with neurological conditions Not for profit organisations which provide specialist services and support to people with neurological conditions have sustained funding cuts of up to 14 in recent years These organisations are often the only source of support available Groups have forced to cut back on essential services such as respite home care support and helpline hours as a result of cutbacks Fundraising by charities has been

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/30-11-2012-call-to-protect-people-with-neurological-conditions-in-budget-2013 (2015-10-30)
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  • 15.11.2012 New Strategy for Health Reform Launched - New Web Site
    reacts when people become very ill toward a more preventive and planned approach 3 Structural Reform The strategy outlines a series of changes that will take place including the establishment of new hospital groups and a new Child and Family Support Agency to improve service delivery 4 Financial Reform The strategy outlines the introduction of a new Money Follows The Patient MFTP model that will facilitate money following the patient out of the hospital system and into primary care and other related services Funding of the new health service will be progressed through phased introduction of universal health insurance and reform of private health insurance and through improved financial control procedures within the health services The strategy outlines the changes that will occur in three main areas of the health system Primary Care There will be a focus on the development of primary care through capital investment in primary care centres development of the primary care workforce removal of fees to improve access to GP care and improved ICT and reporting structures within primary care to allow greater communication between team members Hospitals The strategy provides for the continued work of the Special Delivery Unit to acheive more responsive and equitable access to care the establishment of a hospital groups and the publication of the framework for the development of smaller hospitals Social and Continuing Care Measures include the reform of the Fair Deal Scheme to allow more people to live at home as they would wish Reform of disability services will be in line with the recent Value for Money and Policy Review The strategy also points to a greater community focus for mental health and the rollout of commissioning in relation to service provision The introduction of individualised budgeting is also highlighted What will all these reforms mean

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/15-11-2012-new-strategy-for-health-reform-launched-201 (2015-10-30)
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  • 26.10.2012 Alzheimer Society marks 30th anniversary - New Web Site
    Rippon spoke of her work with David Cameron s government in the UK to create dementia friendly communities As the daughter of a dementia sufferer she is deeply committed to highlighting and addressing the needs of people with dementia and their families Dominic Trepel a health economist based in New York also addressed the audience pointed out that the global cost of treating dementia is estimated at 466 billion The

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/26-10-2012-alzheimer-society-marks-30th-anniversary-193 (2015-10-30)
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  • 9.10.2012: Play your part: protect neurological care in 2013 - New Web Site
    its EU presidency we still lag far behind the rest of Europe when it comes to neurological care A recent report by the HSE showed that over 5000 people were waiting over a year to see a neurologist and Irish people just can t get access to the kind of specialist care and rehabilitation that is routinely available in other countries Play your part in supporting us to protect neurological

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/9-10-2012-play-your-part-protect-neurological-care-in-2013-190 (2015-10-30)
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  • 5.10.2012: Institute of Public Health highlights increase in stroke - New Web Site
    News NAI Campaigns Personal Stories Get Involved Press Political Support 5 10 2012 Institute of Public Health highlights increase in stroke print version send to a friend share on facebook The Institute of Public Health have outlined that the number of people in Ireland who are diagnosed with stroke is expected to rise by one quarter by 2020 In 2010 about 23 000 people recorded having a stroke in the past 12 months but this is expected to rise to 29 000 by 2020 The Institute outline that seven tenths of this increase is due to population ageing The NAI has repeatedly highlighted the fact that more and more people in Ireland will develop neurological conditions associated with ageing such as dementia Parkinsons disease and stroke The number of people with neurological conditions in Ireland is set to increase to over 860 000 in the next decade The NAI supports the work of its member groups in highlighting the issue of access to treatment and rehabilitation services for survivors of stroke Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and Newsletters Training Links Glossary Membership List of Members Becoming a

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/5-10-2012-institute-of-public-health-highlights-increase-in-stroke (2015-10-30)
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  • 29.9.2012: Irish MEP's support Europe wide policies on MS healthcare - New Web Site
    in Europe The declaration was put forward by the European Multiple Sclerosis Platform EMSP Eleven of the twelve Irish MEP s signed the declaration showing their overwhelming support for better standards of care for people with MS accross Europe The declaration calls for action at both a European and a national level At a European level the declaration calls on the European Commission and Council to encourage closer scientific collaboration and comparitive research on MS within the framework of Horizon 2012 the European research funding programme promote in their reflection process on chronic disease equal access to treatment and flexible employment policies for people with chronic neurological disorders such as MS At a national level the declaration calls on member states to enhance equal access to quality care for example by using certified educational training tools Such as MS Nurse Professional to develop standardise and benchmark specialist nursing staff training support the European register for MS by encouraging patient data collection at national level The NAI warmly welcomes the support of Irish MEP s for this declaration NAI and its members will be seeking the support of Irish political representatives both in Europe and here at home for a wide

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/29-9-2012-irish-mep-s-support-europe-wide-policies-on-ms-healthcare-183 (2015-10-30)
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