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  • 20.2.2013 NAI survey highlights "scandalous" neurological service deficits - New Web Site
    that around 150 000 out of some 700 000 people living with neurological conditions in Ireland require ongoing rehabilitation services across large swathes of the country are fragmented patchy or non existent This study highlights the scandalous absence of services for people whose lives have been saved but whose quality of life is being virtually ignored after they leave hospital Being in a car crash having a stroke or being diagnosed with MS can have a devastating impact both physically and psychologically Our health service can t just exist to patch patients up and then wash its hands of them We have to help people get back as much of their lives as possible after they are struck by neurological conditions The biggest deficits recorded in the survey were in neuropsychology services which each year are required by around 50 000 people with neurological conditions nationwide However just 20 neuropsychologists are currently in post for the entire country when the number required is around three times that Principal Clinical Neuropsychologist at Beaumont Hospital Dr Niall Pender said that patients missing out on vital psychological treatment are suffering unnecessarily and this will have a serious impact on their functional ability employment possibilities and education Neuropsychologists work across the lifespan and work with children and families following brain injury and return to school They work in facilitating diagnostics and measuring cognitive changes following injuries and illnesses In later life they are a necessary part of a memory clinic in assisting the diagnosis of dementia There are other specialist roles in the pre surgical assessment of epilepsy and in the assessment of mental capacity he added Mr Macey said that neurorehabilitation services in Ireland are recognised to be the worst in Europe And even if the improvements being sought were implemented they would still be worse than those in any other European country with the exception of the UK For example we currently have 7 consultants to serve specialist neurorehabilitation needs across the whole country But even if we had 50 we would still have the lowest number per capita in Europe with the exception of the UK And if it increased to 150 we would still be behind countries like Estonia Latvia Czech Republic Croatia and Serbia In other words what we are really aspiring to is not to have services that any country could be proud of or even services that are mediocre but to be the second worst country in Europe for neurorehabilitation NAI Development Manager Mags Rogers added that it was important to understand that six successive years of HSE cuts to disability funded not for profit organisations continue to have a disproportionate impact on people with neurological conditions Ireland relies on these not for profit groups to provide specialised neurological care and rehabilitation We just don t have the framework of State services that other countries take for granted and these organisations have stepped in to meet the huge unmet need She said that despite the fact that

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/20-2-2013-nai-survey-highlights-scandalous-neurological-service-deficits (2015-10-30)
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  • 15.2.2013 Government publishes white paper on Universal Health Insurance - New Web Site
    version send to a friend share on facebook On 15th February the Department of Health published its long awaited white paper on Universal Health Insurance For more info and to download the paper go to http www dohc ie press releases 2013 20130215 html NAI will be examining this document carefully in terms of what it means for people with neurological conditions Quick Links About Us Aims What We Do

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/15-2-2013-government-publishes-white-paper-on-universal-health-insurance-227 (2015-10-30)
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  • 12.2.2013 Minister Responds to Epilepsy Monitoring Units in the Dail - New Web Site
    country despite considerable investment in redeveloping these units in 2012 On 5th February the Minister for Health Dr James Reilly was questioned by Deputy Billy Kelleher on why these new units remain unopened and when the necessary personnel will become available The Minister responded that recruitment for these posts was being prioritised between the HSE and the hospitals concerned The full text of the Minister s reply as well as

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/12-2-2013-minister-responds-to-epilepsy-monitoring-units-in-the-dail-225 (2015-10-30)
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  • 1.2.2013 NAI to launch findings of 2012 neurorehabilitation survey - New Web Site
    issues and challenges faced by people with neurological conditions and their families in accessing these supports in their local area We would like to invite people with neurological conditions family members and anyone with an interest in neurorehabilitation services to the launch of our neurorehabilitation manifesto in the Mansion House Dublin on Wednesday 20th February The manifesto includes some of the main findings of the survey as well as personal

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/1-2-2013-nai-to-launch-findings-of-2012-neurorehabilitation-survey-223 (2015-10-30)
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  • 29.1.2013 Crisis for Epilepsy Services as Epilepsy Monitoring Units remain closed - New Web Site
    Latest News NAI Campaigns Personal Stories Get Involved Press Political Support 29 1 2013 Crisis for Epilepsy Services as Epilepsy Monitoring Units remain closed print version send to a friend share on facebook NAI is very concerned at recent press coverage highlighting the fact that epilepsy monitoring units in Beaumont Hospital and Cork University Hospital remain closed due to the HSE moratorium on staffing The two units were redeveloped in 2012 as part of investment in the National Epilepsy Clinical Programme The units remain unopened due to the HSE moratorium which prevents the recruitment of nursing and EEG staff to provide a round the clock inpatient service The NAI understands that there are now no epilepsy monitoring beds available in the country Waiting lists for the epilepsy surgery programme now stand at 200 250 people with no date available for resolving this crisis The NAI will work together with Brainwave The Irish Epilepsy Association to highlight this situation including at our upcoming presentation to political representatives in Leinster House on 27th February Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and Newsletters Training Links Glossary Membership List of Members Becoming

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/29-1-2013-crisis-for-epilepsy-services-as-epilepsy-monitoring-units-remain-closed (2015-10-30)
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  • 10.1.2013 HSE Service Plan Published today - New Web Site
    http www hse ie serviceplan2013 The plan places a priority on stabilising hospitals budgetary positions maintaining community services at 2012 levels and delivering further cost efficiencies in the primary care scheme and drug costs The NAI is currently examining the committments in the plan with interest including the committment that no person will wait longer than 52 weeks for an OPD appointment In 2012 over 5000 people were waiting more

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/10-1-2013-hse-service-plan-published-today-217 (2015-10-30)
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  • 3.1.2013 A landmark year ahead for neurological conditions - New Web Site
    Brain Month in association with the EU commission and the European Brain Council As Ireland holds the EU presidency during this period this is an important opportunity to highlight issues affecting the over 700 000 people who live with a neurological condition Details of all events for brain month will be featured on the Brain Month calendar on this website Click here to go to our special brain month section

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/3-1-2013-a-landmark-year-ahead-for-neurological-conditions-214 (2015-10-30)
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  • 18.12.2012 Get ready for Brain Month 2013 - New Web Site
    As part of its committments for the presidency Ireland will host European Brain Month in May 2013 NAI will be using the month to highlight the needs and experiences of the over 700 000 Irish people who live with a neurological condition Events will be taking place nationwide throughout Brain Month to promote awareness of neurological conditions The NAI s Brain Month calendar provides a one stop guide to all

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/18-12-2012-get-ready-for-brain-month-2013 (2015-10-30)
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