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  • 12.6.2013 NAI fights apparent u turn on implementation plan for the national neurorehabilitation strategy - New Web Site
    strategy print version send to a friend share on facebook The NAI has written to Minister of State Kathleen Lynch outlining its concern at an apparent u turn on the development of an implementation plan for the national neurorehabilitation strategy Published in December 2011 the strategy commits to a three year implementation process following the immediate development of an implementation plan The NAI letter outlines this commitment and also highlights the Minister s own statement in the foreword to the strategy that she looks forward to receiving the plan as soon as possible Eighteen months on there is still no implementation plan The NAI was recently copied on a response to a PQ to the effect that an implementation plan was not needed The NAI takes strong issue with this contention pointing out in the letter that implementation of the strategy has been fragmented communication has been poor and there is no mechanism available to monitor progress An implementation plan is urgently needed to address these issues The NAI has sought a meeting with the Minister to address their concerns and highlighted the issue at a meeting of the Joint Oireachtas Committee on Health and Children on the 23rd May

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/12-6-2013-nai-fights-u-turn-on-implementation-plan-for-the-national-neurorehabilitation-strategy (2015-10-30)
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  • 12.6.2013 NAI welcomes decision on mobility allowance - New Web Site
    provisions to provide individual payments to people with severe disabilities who require additional income to address the cost of their mobility needs This is following the Interim report of the Department of Health review group on both schemes the recommendations of which have been published this week The Government has agreed that an inter departmental group chaired by the Department of the Taoiseach will now be asked to develop detailed proposals for the operation of the new scheme or schemes including eligibility criteria and administrative arrangements and should report back to Government by October In addition the Government has agreed that payments should temporarily continue to be made by the HSE to those persons currently in receipt of the Mobility Allowance for a further number of months pending the commencement of a statutory scheme on the basis that this would prevent hardship and on an interim basis alleviate stress anxiety and uncertainty among a vulnerable group in society and having regard to the exigencies that have arisen Speaking on Morning Ireland this morning Minister of State for Disability Kathleen Lynch thanked the disability community for their co operation with the review process and noted that from the beginning the Government

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/12-6-2013-nai-welcomes-decision-on-mobility-allowance-321 (2015-10-30)
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  • 11.6.2013 National Carers Week: Over 60,000 Irish people care for someone with a neurological condition - New Web Site
    neurological condition Campaign Centre Latest News NAI Campaigns Personal Stories Get Involved Press Political Support 11 6 2013 National Carers Week Over 60 000 Irish people care for someone with a neurological condition print version send to a friend share on facebook As events take place to mark National Carers Week this week over 60 000 people in Ireland are caring for a person with a neurological condition These figures are extrapolated from the UK and come from a HSE review of neurology and neurophysiology services in Ireland carried out in 2010 A survey of neurological carers carried out by the NAI and Care Alliance in 2012 found that respondents reported caring for the person for an average of 100 hours per week including night time supervision 71 reported their own health had suffered as a result of caring over 70 reported that the person needed significant help with everyday tasks such as washing or dressing For a full list of events taking place throughout carers week check out www carersweek ie Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and Newsletters Training Links Glossary Membership List of Members Becoming

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/11-6-2013-over-60-000-irish-people-care-for-someone-with-a-neurological-condition-317 (2015-10-30)
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  • 28.5.2013 Irish Examiner highlights the state of Ireland's neurological care services as Irish Government hosts major conference on the Brain - New Web Site
    a front page article today the Irish Examiner highlighted the NAI s concern at the state of Ireland s neurological care services in a week where Ireland is hosting a major European conference on brain conditions as part of its EU presidency Entitled Healthy Brain Healthy Europe the conference calls on EU member states to develop national strategies around brain research and healthcare Over 700 000 Irish people are living with a neurological condition Europe wide brain conditions affect about 165 million people The Examiner article quoted the NAI Development Manager Mags Rogers The Irish Government s committment to neurological care has historically been very poor We have the lowest number of consultant neurologists and rehabilitation consultants in Europe only one in six people who need to are receiving specialist neurorehabilitation Neurosurgery waiting lists are also something we are very concerned about The NAI wrote to Minister Kathleen Lynch last week highlighting our concern at her recent response to a Parliamentary Question in which she stated that an implementation plan for the National Neurorehabilitation Strategy is not needed It is the strong viewpoint of the NAI that an implementation plan is essential to ensure that the committments made in the

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/28-5-2013-irish-examiner-highlights-the-state-of-ireland-s-neurological-care-services-as-irish-government-hosts-major-conference-on-the-brain (2015-10-30)
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  • 27.5.2013 Ireland leads EU brain services think in but should sort out "appalling deficits" at home first - New Web Site
    should sort out appalling deficits at home first The Government was today urged to address appalling deficits in our own neurological services before trying to sort out those in the rest of Europe as a major conference to develop national brain health strategies got under way in Dublin as the Irish EU Presidency s contribution to European Brain Month The Neurological Alliance of Ireland NAI the umbrella group for neurological not for profit organisations in this country said services here were among the worst in Europe with just one in six of 15 000 people requiring specialist neurorehabilitation each year receive a service whilst over 1000 patients waiting more than four years to see a neurologist in a hospital outpatients clinic It s an irony that Ireland is at the centre of efforts to develop neurological services across the EU when those in our own country are so desperately poor said NAI Development Manager Mags Rogers She was speaking before the start of the two day Healthy Brain Healthy Europe which begins in the National Convention Centre today Ms Rogers said one critical area requiring action was the Government s national neurorehabilitation policy Eighteen months after the policy was published they haven t even managed to deliver the promised implementation plan and now they are rolling back on the need for such a plan even though there is a clear commitment to it in the policy That is a decision that will have a severe impact on the quality of life of thousands of people in every corner of Ireland Ms Rogers added that 38 of all neurology patients were waiting more than a year for an outpatients appointment and 37 requiring neurosurgery being left untreated for over six months In addition we have the fewest rehabilitation medicine consultants per

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/27-5-2013-ireland-leads-eu-brain-services-think-in-but-should-sort-out-appalling-deficits-at-home-first (2015-10-30)
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  • 7.5.2013: Campaigning for Brain Month: How can you help - New Web Site
    Ireland is hosting European Month of the Brain all during May but is among the worst countries in Europe in terms of investing in and developing neurological care services You can help to highlight this situation throughout May by 1 Downloading our factsheet on Living with a Neurological Condition in Ireland to learn more Click here 2 Visit here to send your TD s our Red Care for Neurological Care

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/7-5-2013-campaigning-for-brain-month-how-can-you-help (2015-10-30)
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  • 1.5.2013 NAI Press Release: Ireland Hosts European Month of the Brain but gets a Red Card for Neurological Care - New Web Site
    group for the countries neurological charities launched its RED CARD campaign for neurological care to highlight massive deficits in services for conditions such as epilepsy stroke Parkinson s disease and multiple sclerosis including Over 1000 patients waiting more than four years to see a neurologist in a hospital outpatient clinic and 38 of all patients waiting more than a year 37 requiring neurosurgery being left untreated for over six months The lowest number of rehabilitation medicine consultants per capita in Europe If our 7 consultants increased to 50 we d still have the second lowest number in Europe per head of population Cumulative cutbacks of 15 forcing the curtailment or closure of vital community services NAI Development Manager Mags Rogers said Given the state of our neurological services Ireland is the last country in the EU that should be hosting Brain Month and it is a bitter irony for people with neurological conditions here that this duty has fallen to Ireland as part of the duties of our EU Presidency Unacceptable waiting times for diagnosis lack of access to vital neurorehabilitation and savage cuts to local services mean that in many respects Irish services are possibly the worst not just in the EU but in the whole of Europe Ms Rogers said that although the Government blames the economic collapse for the failure to improve services many cost free proposals in its national neurorehabilitation policy published at the end of 2011 still haven t been implemented We re almost halfway into the three year lifespan of the policy and not only has the crucial implementation plan not been published the Government still hasn t even set up an implementation group Speaking on the launch video for the RED CARD campaign supported by members of Sunday s winning Dublin GAA team

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/1-5-2013-nai-press-release-ireland-hosts-european-month-of-the-brain-but-gets-a-red-card-for-neurological-care-285 (2015-10-30)
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  • 16.4.2013: Send your politicians a red card for Brain Month - New Web Site
    to lag far behind most European countries when it comes to investing in and developing services for people with neurological conditions Help to make your local TD s aware of this NOW by sending them our RED CARD for neurological care Click here to visit our Contact Your TD page where you can select your local TD s and send the card automatically Download details of the red card on

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/16-4-2013-send-your-politicians-a-red-card-for-brain-month-272 (2015-10-30)
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