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  • 29.8.2013 Help us to highlight neurological issues in the run up to the budget - New Web Site
    Get Involved Press Political Support 29 8 2013 Help us to highlight neurological issues in the run up to the budget print version send to a friend share on facebook Fears are growing about the prospect of cuts to health spending in this years budget in October A succession of funding cuts year on year since 2008 have seen services for people with neurological conditions steadily eroded over time Cuts to community based supports in particular have meant that people no longer have access to the supports they need to live well and independently for as long as possible in their communities which is stated Government policy In a year where Ireland hosted a major European conference on brain conditions over 700 000 Irish people with these conditions are faced with cutbacks loss of services and increased costs What can you do to help Please use our automatic online service NOW to send our pre budget submission to your local TD s You simply select your county and your local TD s will appear Click here to contact your local TDs Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/29-8-2013-help-us-to-highlight-neurological-issues-in-the-run-up-to-the-budget-363 (2015-10-30)
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  • 27.8.2013 Ongoing concerns about cuts to disability services - New Web Site
    Personal Stories Get Involved Press Political Support 27 8 2013 Ongoing concerns about cuts to disability services print version send to a friend share on facebook Once again this week cuts to disability services were to the fore with a number of representative groups coming out to highlight their concerns John Dolan CEO of the Disability Federation of Ireland spoke out in an editorial piece in The Journal where he urged the Government to remember their pre election promises to people with disabilities In particular Mr Dolan highlighted cuts to special needs assistants and the recently profiled difficulty in obtaining medical cards among people with chronic illness and disability Groups representing people with intellectual disability and their families have spoken out in relation to the lack of places for school leavers and the withdrawal of day services due to cutbacks NAI has received strong support from opposition health and disability spokespersons on its pre budget submission and will continue to outline its concerns in the run up to the budget in October Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and Newsletters Training Links Glossary Membership List of Members Becoming

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/27-8-2013-ongoing-concerns-about-cuts-to-disability-services (2015-10-30)
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  • 20.8.2014 NAI Pre Budget Submission 2014 now available - New Web Site
    to a friend share on facebook The NAI has published its pre budget submission for 2014 In the year in which the Irish Government hosted a major Europe wide conference on brain conditions the NAI is calling for a commitment to protect people with neurological conditions and their families from further cutbacks You can download the pre budget submission in full here Quick Links About Us Aims What We Do

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/20-8-2014-nai-publishes-its-pre-budget-submission (2015-10-30)
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  • 7.8.2013 Continuing coverage of medical card issue - New Web Site
    version send to a friend share on facebook The issue of discretionary medical cards for people with neurological conditions continues to receive coverage in the media on an ongoing basis this week Although much of the focus has been on motor neurone disease it is clear to NAI from reports from its membership that this problem extends to a range of neurological conditions and the situation has certainly deteriorated in the past year NAI highlighted the situation in a radio interview on Kildare Today on Tuesday 6th August NAI will be commencing a poll on our social media sites to collect statistics on the number of people having difficulty applying for or retaining their medical card and will announce details in the coming days In the meantime queries and concerns in relation to this matter can be e mailed to Mags at See the links below for more detail on this issue http www rte ie radio utils radioplayer rteradioweb html rii 9 3A10169473 3A0 3A 3A 1 24in http www imnda ie medical cards for people with motor neurone diseasemedical cards for people with motor neurone disease html Quick Links About Us Aims What We Do Board Staff Resources

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/7-8-2013-continuing-coverage-of-medical-card-issue-349 (2015-10-30)
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  • 1.8.2013 Concern over access to medical cards for people with neurological conditions - New Web Site
    on facebook The NAI is increasingly concerned at reports that people with terminal neurological conditions are having difficulty applying for a discretionary medical card Emergency medical cards are supposed to be provided to patients with a terminal illness following receipt of a letter from a consultant However a report in the Sunday Business Post on 21st July highlighted situations where applications for a discretionary medical card had been rejected and revealed a pattern of inconsistency in the allocation of these cards The issue of denying medical cards for cancer patients unless the illness was terminal has recently received significant attention in the media However it appears that having a certified terminal condition is no guarantee that an application for a medical card will be successful People with neurological conditions can incur significant expenditure for specialised equipment physiotherapy and other supports which are prohibitive in terms of costs without access to a medical card Since the publication of this article the NAI has been contacted with a number of reports highlighting the lack of clarity around issuing of medical cards to people with neurological conditions The NAI invites anyone with information or concerns in relation to this matter to contact them

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/1-8-2013-concern-over-access-to-medical-cards-for-people-with-neurological-conditions (2015-10-30)
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  • 30.7.2013 Concern over waiting lists for nursing home places - New Web Site
    nursing home places print version send to a friend share on facebook Concern is growing over waiting lists and access to nursing home places Nursing Homes Ireland which represents both private and voluntary nursing homes has suggested that by the end of 2013 some 2000 people will be waiting for nursing home places under the Fair Deal scheme The current waiting time of 6 weeks for funding approval for a place under the Fair Deal scheme is set to increase to 17 weeks The NAI is concerned at proposed plans by the Department of Health to prioritise older persons within the acute hospital sector under the Fair Deal scheme The purpose of this change is to address the pressures on the acute system to discharge long stay patients and free up hospital beds This potentially has the effect of penalising older people living in the community who are now lower down the list under what was previously a first come first served equitable scheme The NAI is seeking more information on this issue and how these proposed changes will impact on people with neurological conditions and their families Quick Links About Us Aims What We Do Board Staff Resources NAI

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/30-7-2013-concern-over-waiting-lists-for-nursing-home-places (2015-10-30)
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  • 29.7.2013 Publication of Implementation Plan for the National Disability Strategy - New Web Site
    National Disability Strategy Implementation Group and submitted to Government on 23rd July The plan commits the Government to achieve progress on the implementation of the National Disability Strategy over the next three years In announcing the publication Minister Kathleen Lynch Minister of State for Disability stated that this plan calls to action all individuals organisations local and National Government to think positively about disability It is a collaborative effort and an open invitation to community and voluntary sectors to work creatively together with statutory agencies and government departments to improve the lives of people with disabilities over the next three years It is an opportunity to build on the progress achieved by the strategy to date and ensure going forward that people with disabilities have more control and choice in their lives can reach their full potential and can participate in the everyday life of the community John Dolan CEO of the Disability Federation of Ireland commenting on the publication of the Implementation Plan noted Overall it lacks ambition and does not include many of the priority actions which DFI have suggested since the start of the drafting process for the plan For example there is no priority given to the important role played by existing community supports and services funded through the HSE and other Departments that enable people s access and participation in life in the community Equally there is no mention of supports such as Personal Assistance a vital support for independent living for many people DFI conclude that the overall plan is not comprehensive and lacks a whole of government approach Neurological Conditions are among the most significant causes of disability The Neurological Alliance in the UK estimate that 25 of those between the ages of 16 and 64 with a disability have a neurological condition

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/29-7-2013-publication-of-implementation-plan-for-the-national-disability-strategy (2015-10-30)
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  • 12.6.2013 Cuts to respite grant goes ahead despite protests - New Web Site
    House on the first sitting Oireachtas day following Dáil recess The 77 000 family carers in receipt of the Respite Care Grant will now see their payment reduced from 1 700 to 1 375 a 19 reduction The Carers Association s current Give Carers a Break campaign was launched appealing to Government to reverse the proposed cut to the Respite Care Grant and to implement no further cuts to carers payments As part of this campaign family carers across the country were invited to tell their story and how cuts are affecting them These affects include family carers stressing each night about money many in arrears on payments turning off heating and electricity forced to sell their cars which are often their only means of transport and even going hungry We are very disappointed and angry that Government has gone ahead with this savage cut to the Respite Care Grant This payment is given to allow family carers take a much needed break from their often round the clock caring role In reality it is also used for respite from financial worries and to cover the hidden costs of caring such as increased electricity fuel and medical bills said Catherine Cox The Carers Association Family carers save the state over four billion euro each year and have no legal entitlements to holidays or even a day off At a time of mass emigration and a rapidly ageing population the demands on family carers have never been greater and yet Government is making cut after cut with the respite care grant following the elimination of the mobility allowance and virtual abolition of the housing adaptation grant The wellbeing of family carers is in serious jeopardy and we are facing a situation where they will just have to give up and hand

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/12-6-2013-cuts-to-respite-grant-goes-ahead-despite-protests (2015-10-30)
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