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  • 2.10.2015 Launch of national employment strategy for people with disabilities - New Web Site
    and state agencies in a concerted effort to address the barriers and challenges that impact on the employment of people with disabilities A number of straetgic goals are outlined with accompanying action areas 1 Building skills 2 Providing bridges and supports into work 3 Making work pay 4 Promoting job retention 5 Provide a seamless service 6 Engaging employers While the NAI broadly welcome the strategy it has to be pointed out that many people with neurological conditions will be unable to maximise their opportunity to return to work retrain or look to retain employment without access to specialist neurorehabilitation services to allow them to recover from or adapt to the effects of a neurological condition The Governments national neurorehabilitation strategy published in 2011 outlined a three year implementation period 2011 2015 to roll out a nationwide framework of neurorehabilitation services to include specialist supports aimed at vocational training for people with neurological conditions An implementation plan still has not been published and there has been little or no progress on the development of services There is also little recognition in the employment strategy of the role of not for profit providers and patient organisations which are key to developing

    Original URL path: http://www.nai.ie/go/news/launch-of-national-employment-strategy-for-people-with-disabilities (2015-10-30)
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  • 23.9.2015 NAI submission on Ireland's human rights record - New Web Site
    available to download below The Universal Periodic Review UPR is a United Nations human rights monitoring mechanism whereby other UN countries review each other s human rights record with the aim of improving the human rights situation in each country within the UN In 2016 Ireland will be examined for the second time under UPR Other UN countries will ask for updates on the implementation of previous UPR recommendations and new issues can be raised too Civil society groups have the opportunity to contribute to Ireland s examination by providing evidence to the UN about the situation on the ground as well as highlighting gaps in human rights protection and promoting awareness of international human rights standards Attached Documents NAI submission to UN Periodic Review 2015 Neurological 20Alliance 20of 20Ireland 20Submission 20for 20the 2025th 20Session 20of 20the 20UPR 20working 20group pdf 521 kB NAI submission to the UN periodic review highlighting issues that continue to face Irish people with neurological conditions and their families in relation to 1 access to health services 2 access to rehabilitation services 3 access to appropriate accomodation 4 legislation to support their involvement in making decisions that matter to them Quick Links About Us Aims

    Original URL path: http://www.nai.ie/go/news/23-9-2015-nai-submission-on-ireland-s-human-rights-record (2015-10-30)
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  • 22.9.2015 Download our latest e zine to politicians - New Web Site
    share on facebook NAI sends a quarterly e zine to political representatives who have agreed to be listed on our website as supporters of issues affecting the 700 000 Irish people living with neurological conditions Download our September 2015 e zine which outlines details of our pre budget submission here Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and Newsletters

    Original URL path: http://www.nai.ie/go/news/22-9-2015-download-our-latest-e-zine-to-politicians-677 (2015-10-30)
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  • 21.9.2015 NAI joins other health and disability groups in sending a strong pre budget message to Government - New Web Site
    strong pre budget message to Government print version send to a friend share on facebook The NAI joined eight other umbrella organisations in the health and disability sector this morning in sending a strong message to Government that the current economic recovery has to extend to people with disabilities and their families who bore the brunt of the recession Groups outlined the need to reverse cuts to disability and other health services invest in supports for people with disabilities and introduced much needed reforms in the area of capacity legislation and the introduction of personalised budgets NAI focused on the withdrawal of funding to all twelve neurological charities under the SSNO scheme which leaves people dependent on vital services in limbo The full NAI pre budget submission is available to download below Organisations Participating in Pre Budget Launch Disability Federation of Ireland Care Alliance Ireland Neurological Alliance of Ireland Inclusion Ireland Genetic and Rare Diseases Organisation National Federation of Voluntary Bodies Mental Health Reform Centre for Independent Living Attached Documents NAI Pre Budget Submission 2016 Neurological Alliance of Ireland Pre Budget Submission 2016 pdf 660 kB Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance

    Original URL path: http://www.nai.ie/go/news/21-9-2015-nai-joins-other-health-and-disability-groups-in-sending-a-strong-pre-budget-message-to-government (2015-10-30)
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  • 10.9.2015 NAI comments on Review of Bridging Funding to Organisations Affected by SSNO - New Web Site
    the review acknowledges the vital nature of the supports and services provided and the recogniton of the challenges facing voluntary organisations there is little attempt to understand the concerns raised by the NAI and its members in relation to the decision making process 1 Many of the points raised by the umbrella in relation to the decision making process are not satisfactorally explained see point 5 2 The report comments that unsuccessful applications did not show sufficent evidence of joint working and collaboration Three of the unsuccessful applicants were umbrella organisations which are by definition collaborative 3 The report makes a reference to the SSNO scheme being top heavy with health related organisations This is not helpful People with disabilites and chronic illness have been demonstrated to be at high risk of disadvantage and are entitled to be considered for supports on an equal footing with other groups 4 Joint discussions with the Department of Health are mentioned but there is no outline of any outcome from these discussions 5 The crtieria put forward for the replacement scheme as outlined in the report differ little from the 2014 SSNO critieria and do not present solutions to the key issues raised by the NAI in relation to the decision making process a the issue of health and disability organisations being considered on an equal footing and b the issue of people with disabilities and chronic illness as a disadvantaged group and as such equally eligible to be considered for the scheme 6 The 2013 review highlighted the value of national networks and umbrellas but this learning is not incorporated or explored further anywhere within the document including in the recommendations for the 2016 scheme 7 The review of financial statements of unsuccessful organisations conducted by Pobal and outlined in the report

    Original URL path: http://www.nai.ie/go/news/10-9-2015-nai-comments-on-review-of-bridging-funding-to-organisations-affected-by-ssno (2015-10-30)
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  • 7.9.2015 Launch of access to medicines guide by MS Ireland provides a vital template for other neurological organisations - New Web Site
    Ireland provides a vital template for other neurological organisations print version send to a friend share on facebook Launch of Access to Medicines Guide provides a vital template for other neurological organisations MS Ireland has launched an important guide to accessing medicines which is a vital blueprint for other not for profit organisations in the neurological sector The Neurological Alliance of Ireland warmly welcomes the launch of the Access to Medicines campaign handbook for people with multiple sclerosis which provides an important template for people with other neurological conditions in terms of understanding and navigating the complex process of approving new medications for reimbursement by the health services The guide represents a vital tool to empower people to access the medications they need NAI welcomed the opportunity to have an input into the development of the guide and encourages all its members to examine this document carefully as an important template for other organisations to follow in this area The guide is available to download at http www ms society ie blog articles 1893 access to medicines campaign handbook launched by minister for health Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards

    Original URL path: http://www.nai.ie/go/news/7-9-2015-launch-of-access-to-medicines-guide-by-ms-ireland-provides-a-vital-template-for-other-neurological-organisations (2015-10-30)
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  • 6.8.2015 NAI response to consultation on an Implementation Plan for the National Disability Strategy 2016-2019 - New Web Site
    to download below The NAI response highlights the need to include the National Neurorehabilitation Straetgy in the implementation plan for the NDS in order to meet the needs of people with a neurological disability and to address Ireland s requirements under the UN Convention to Support the Rights of People with Disabilities The NAI submission also outlines the priorities for people with a neurological disability in a range of areas

    Original URL path: http://www.nai.ie/go/news/6-8-2015-nai-response-to-consultation-on-an-implementation-plan-for-the-national-disability-strategy-2016-2019 (2015-10-30)
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  • 22.7.2015 NAI publishes its Pre Budget Submission on World Brain Day - New Web Site
    conditions This investment is required to meet the committments outlined in the Government s own strategies for dementia rare disease and neurorehabilitation and to address critical deficits accross hospital neurology services The NAI submission outlines 6 areas of recommendation as follows 1 Providing a sustainable funding stream for the vital services provided by the Neurological Alliance of Ireland and eleven other neurological charities funded under the SSNO scheme 2 Targeting investment in hospital based neurology services to address critical understaffing and other deficits which continue to impact on patient care 3 Developing a network of nine community based neurorehabilitation teams one in each of the Community Health Organisation CHO areas as committed to in the National Neurorehabilitation Strategy published in 2011 Not one team has been put in place since the strategy was published and the three year implementation period for the strategy comes to an end in 2015 4 Funding services to support the implementation of the National Dementia Strategy 5 Investing in appropriate services for genetic diagnosis and counselling to address the deficits recognised in the National Plan for Rare Diseases 2014 6 Ensuring access to discretionary medical cards for people with a neurological condition You can download

    Original URL path: http://www.nai.ie/go/news/22-7-2015-nai-pre-budget-submission-2016-now-available (2015-10-30)
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