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  • 11.6.2015 Download our latest e zine to politicians
    e zine to politicians NAI sends a quarterly e zine to a group of political representatives who have agreed to support issues affecting people with neurological conditions You can view

    Original URL path: http://www.nai.ie/speck/types/article/print.cfm?app=nai&id=E2CA6D52-BB2C-C6F9-583A9516BFD28964 (2015-10-30)
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  • 25.5.2015 NAI statement on temporary extension of SSNO funding to 12 neurological charities
    which saw the withdrawal of funding to ALL the neurological charities which were on the SSNO funding scheme to support national voluntary organisations Mags Rogers Development Manager with the Neurological Alliance said today This is a sensible decision from Government in recognising the critical need for the services provided by these twelve neurological charities However the funding has only been extended to June 2016 which means further uncertainty and no permanent solution in place which means that these charities once again face an uncertain future and there is no guarantee for people with neurological conditions and their families that these services will be available after June 2016 The NAI also commented on the huge pressure and burden that months of uncertainty had placed on the charities affected The charities involved were subjected to two different reviews and months of uncertainty including calls from very vulnerable people who were anxious about continuing to receive services Charities have been sidelined into spending significant time and effort in seeking to have the funding extended time that should have been available to concentrate on supporting people with neurological conditions and their families While the Neurological Alliance welcomes the Ministers decision today it is at

    Original URL path: http://www.nai.ie/speck/types/article/print.cfm?app=nai&id=E2C935E3-E1B1-3768-6B1F285BA34170E5 (2015-10-30)
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  • 21.4.2015 NAI statement on funding to local neurological charities in the lead up to Carlow Kilkenny bi-election
    700 000 Irish people with neurological conditions such as stroke dementia and multiple sclerosis were facing closure or the loss of vital frontline services due to the decision by the Minister for the Environment not to renew existing funding to ALL the neurological charities which were in receipt of funding under the SSNO scheme to support national voluntary organisations As the Government prepares to hold a bi election in Carlow Kilkenny people with neurological conditions in these counties face the loss of vital supports and services as these charities face severe cuts and in some cases the complete closure of operations Carlow Kilkenny is a region that is already poorly resourced with two neurologists serving the entire South East region with no dedicated multidisciplinary team in place People with neurological conditions in the Carlow Kilkenny have long campaigned for better services and with the potential loss of funding to local neurological charities this June they feel their needs are being further ignored by Government Minister Alan Kelly announced a temporary extension of funding to June 2015 The organisations involved have since been subjected to two separate reviews one carried out by Pobal and another joint review by his own Department and the Department of Health and both have failed to announce any decision to date The Minister has refused to meet with umbrella groups including the Neurological Alliance of Ireland to discuss the issue Magdalen Rogers from the Neurological Alliance of Ireland NAI notes it is hard to escape the conclusion that there is no value placed on these services and the people with neurological conditions and their families who are dependent on them The Neurological Alliance of Ireland are calling for immediate action to extend funding to these organisations given the delay in achieving any progress on this issue

    Original URL path: http://www.nai.ie/speck/types/article/print.cfm?app=nai&id=DB3426BC-CC3B-7412-9D444C3EA2CB4952 (2015-10-30)
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  • 1.4.2015: NAI continues to highlight the SSNO funding crisis and the impact on vital supports for people with neurological conditions and their families
    vital funding under the SSNO funding scheme last June The funding was temporarily restored for a one year period but the organisations are facing the same situation in two months time because no decision has been made on two appeals processes in relation to the scheme The first appeals process took place last August and we are aware that the outcome was available to the Minister for the Environment as

    Original URL path: http://www.nai.ie/speck/types/article/print.cfm?app=nai&id=7414579E-B920-10ED-B7BEDB57389B2329 (2015-10-30)
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  • 5.3.2015 PRESS RELEASE People with neurological conditions face closure of vital services
    15 th Irish people with neurological conditions and their families once again face the loss of vital services and the closure of the Neurological Alliance of Ireland the single umbrella body representing the voice of the over 700 000 people who are living with neurological conditions in this country Ireland s neurological care services are historically underdeveloped and underresourced with long waiting lists for diagnosis and treatment and the significant lack of neurorehabilitation services which would be taken for granted in other developed countries Irish people are critically dependent on the services provided by charities and the loss of funding under this scheme represents the loss of over 600 000 to an already struggling and underfunded neurological care service in this country Minister Alan Kelly announced a temporary extension of funding to June 2015 The organisations have since been subjected to two separate reviews one carried out by Pobal and another joint review by his own Department and the Department of Health and both have failed to announce any decision to date The Minister has not responded to requests from the umbrella organisation representing these groups the Neurological Alliance of Ireland to meet with him to discuss the situation Mags Rogers of the Neurological Alliance of Ireland the national umbrella of neurological charities said today It is now the beginning of March and the charities affected have no choice but to put committed and experienced staff on protective notice and explain to vulnerable people with neurological conditions and their families that once again they face the loss of critical services such as counselling helpline support and home supports to enable people to stay out of hospital and in their own communities Given the delays and lack of communication with the organisations affected it is hard to escape the conclusion that

    Original URL path: http://www.nai.ie/speck/types/article/print.cfm?app=nai&id=EA5063D5-0DBA-5613-EDF9FC9C2C6BD643 (2015-10-30)
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  • 14.1.2015 UK Neurological Alliance launches vital report on neurological services
    relating to the provision of neurology services Only 20 4 and 26 2 of CCGs have assessed the number of people using neurological services and the prevalence of neurological conditions within their area respectively Only 33 of CCGs obtain vital feedback from patients in regards to the neurological services they commission These issues have a significant impact on patients care with 58 1 of patients having experienced problems in accessing the services or treatment they need In response the report sets out a number of recommendations including Every CCG should collate up to date and accurate local neurology data underpinned by routine and rigorous assessments of the prevalence of neurological conditions and of the number of people using neurological services locally All CCGs should ensure that mechanisms are put in place to encourage and capture patient feedback and input in regards to the quality and development of local neurology services CCGs should work in partnership to identify clinical and research trial opportunities locally and support the appropriate sharing of information on such opportunities with patients How can we use these findings here in Ireland Once again the Neurological Alliance in the UK has produced a quality comprehensive piece of work

    Original URL path: http://www.nai.ie/speck/types/article/print.cfm?app=nai&id=E89C7B9E-DDEA-0B63-CE8B44D9928311D4 (2015-10-30)
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  • 3.12.2014 Waiting lists for neurology show a steep rise
    than 12 months for an outpatient appointment to see a neurologist show another increase to 1 695 up 746 from 949 in May 2014 The figures are representative of an overall increase accross the health service in the number of people waiting more than 12 months for an outpatient appointment NAI is very concerned about the rate of increase in recent months and the fact that we are now a

    Original URL path: http://www.nai.ie/speck/types/article/print.cfm?app=nai&id=29C9D3F0-EA4B-C103-C86A397A9B39456E (2015-10-30)
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  • 19.11.2014 Latest e zine to political representatives on issues affecting Irish people with neurological conditions
    Latest e zine to political representatives on issues affecting Irish people with neurological conditions Check out our latest e zine for political representatives highlighting key issues affecting Irish people with

    Original URL path: http://www.nai.ie/speck/types/article/print.cfm?app=nai&id=C7EFA264-FD1A-7726-EF6FCBAB3FF3F6D9 (2015-10-30)
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