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  • 16.7.2014 Leading Neurologist Speaks Out about funding cuts to brain charities - New Web Site
    the Neurological Alliance of Ireland following the Department of the Environment decision to pull funding to neurological charities The Neurological Alliance of Ireland NAI is the only advocacy group speaking on behalf of 700 000 Irish people with neurological conditions They are now being shut out of Irish society their voice is being silenced I was horrified when I heard the news because I know just how much neurological conditions impact on individuals and their families I see it every day I helped a group of neurological charities to found the NAI eighteen years ago because these people and their families did not have a voice and the NAI has been extremely effective in representing them The Department of the Environment has funded the NAI since 2002 through successive schemes to support national voluntary organisations In an unprecedented situation the umbrella which represents over 30 neurological charities was completely denied funding along with all eleven of its member organisations which had applied The Neurological Alliance of Ireland is calling on the new Minister for the Environment to meet with charities affected by the funding situation The Taoiseach s statement yesterday that charities can appeal the decision will be cold comfort

    Original URL path: http://www.nai.ie/go/campaign_centre/press/16-7-2014-leading-neurologist-speaks-out-about-funding-cuts-to-brain-charities (2015-10-30)
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  • 11.3.2014 Press release: New survey highlights "shocking" neurological service deficits - New Web Site
    on their quality of life said Chris Macey chairman of the NAI which represents 30 organisations in the neurological sector at the launch of the survey in Dublin s Mansion House Also speaking at the launch were Sinn Fein Health spokesman Caoimhghin O Caolain Independent TD Denis Naughten and Senator Marie Moloney and Senator Jillian Van Turnhout This is not a scientific survey so we cannot say how accurately the results represent the national picture What we can say is that the trends are steeply downward and that people with neurological conditions are hugely worse off than the last time we surveyed access to services in 2011 a low base by any estimation This diminishing access is highlighted by the increase in those who could get no access whatsoever to the service they required NAI 2014 Survey Findings Versus NAI 2011 Survey Respite Care 25 4 Home adaptation 25 8 Psychology 24 16 Specialist Nurse 20 11 Occupational Therapy 15 9 Physiotherapy 14 9 Speech Language Therapy 13 5 Aids Appliances 13 9 The priority we place on services such as those for people who have sustained a brain injury from a car crash have suffered a stroke or who are diagnosed with a condition like MS or motor neurone disease is a true test of what kind of country we live in added Mr Macey He said the NAI was calling on the Government not just to commit to making no further cuts to community services or benefits and entitlements but to look at the human and economic benefits of prioritising investment in community services that can save lives and quality of life on a major scale The NAI is also urging the Government to show committment to prioritising neurological services including by finalising the long awaited implementation plan

    Original URL path: http://www.nai.ie/go/campaign_centre/press/11-3-2014-press-release-new-survey-highlights-shocking-neurological-service-deficits (2015-10-30)
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  • 10.3.2014 Press notice for Brain Awareness Week - New Web Site
    for Brain Awareness Week print version send to a friend share on facebook Press Notice Devastating impact of three years of cuts on Irish people living with neurological conditions The results of a national survey of 600 people to be launched in Dublin s Mansion House on Tuesday March 11 th at 10 45am show the serious impact of successive cuts to health services and benefits on people living with neurological conditions such as stroke epilepsy multiple sclerosis and Parkinsons disease The survey carried out in early 2014 and being released as part of National Brain Awareness Week March 10 th to 15 th shows significantly reduced access to services such as respite care and therapy major reductions in medical card eligibility and cuts to mobility allowances home help and home care packages National Brain Awareness Week takes place each year to promote awareness of neurological conditions which affect over 700 000 people in Ireland For a full listing of events nationwide see http www nai ie go brain awareness week events Ends Contact for all media queries Mags Rogers 086 1216957 Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports

    Original URL path: http://www.nai.ie/go/campaign_centre/press/10-3-2014-press-notice-for-brain-awareness-week (2015-10-30)
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  • 27.5.2013: Latest press release from our campaign centre: Ireland leads EU brain services think-in but should sort out "appalling deficits" at home first - New Web Site
    leads EU brain services think in but should sort out appalling deficits at home first The Government was today urged to address appalling deficits in our own neurological services before trying to sort out those in the rest of Europe as a major conference to develop national brain health strategies got under way in Dublin as the Irish EU Presidency s contribution to European Brain Month The Neurological Alliance of Ireland NAI the umbrella group for neurological not for profit organisations in this country said services here were among the worst in Europe with just one in six of 15 000 people requiring specialist neurorehabilitation each year receive a service whilst over 1000 patients waiting more than four years to see a neurologist in a hospital outpatients clinic It s an irony that Ireland is at the centre of efforts to develop neurological services across the EU when those in our own country are so desperately poor said NAI Development Manager Mags Rogers She was speaking before the start of the two day Healthy Brain Healthy Europe which begins in the National Convention Centre today Ms Rogers said one critical area requiring action was the Government s national neurorehabilitation policy Eighteen months after the policy was published they haven t even managed to deliver the promised implementation plan and now they are rolling back on the need for such a plan even though there is a clear commitment to it in the policy That is a decision that will have a severe impact on the quality of life of thousands of people in every corner of Ireland Ms Rogers added that 38 of all neurology patients were waiting more than a year for an outpatients appointment and 37 requiring neurosurgery being left untreated for over six months In addition we

    Original URL path: http://www.nai.ie/go/campaign_centre/press/latest-press-release-from-our-campaign-centre-27-5-2013-ireland-leads-eu-brain-services-think-in-but-should-sort-out-appalling-deficits-at-home-first (2015-10-30)
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  • 1.5.2013: Latest Press Release from our campaign centre: Ireland hosts European Month of the Brain but gets a Red Card for Neurological Care - New Web Site
    Ireland NAI the umbrella group for the countries neurological charities launched its RED CARD campaign for neurological care to highlight massive deficits in services for conditions such as epilepsy stroke Parkinson s disease and multiple sclerosis including Over 1000 patients waiting more than four years to see a neurologist in a hospital outpatient clinic and 38 of all patients waiting more than a year 37 requiring neurosurgery being left untreated for over six months The lowest number of rehabilitation medicine consultants per capita in Europe If our 7 consultants increased to 50 we d still have the second lowest number in Europe per head of population Cumulative cutbacks of 15 forcing the curtailment or closure of vital community services NAI Development Manager Mags Rogers said Given the state of our neurological services Ireland is the last country in the EU that should be hosting Brain Month and it is a bitter irony for people with neurological conditions here that this duty has fallen to Ireland as part of the duties of our EU Presidency Unacceptable waiting times for diagnosis lack of access to vital neurorehabilitation and savage cuts to local services mean that in many respects Irish services are possibly the worst not just in the EU but in the whole of Europe Ms Rogers said that although the Government blames the economic collapse for the failure to improve services many cost free proposals in its national neurorehabilitation policy published at the end of 2011 still haven t been implemented We re almost halfway into the three year lifespan of the policy and not only has the crucial implementation plan not been published the Government still hasn t even set up an implementation group Speaking on the launch video for the RED CARD campaign supported by members of Sunday s

    Original URL path: http://www.nai.ie/go/campaign_centre/press/1-5-2013-nai-press-release-ireland-hosts-european-month-of-the-brain-but-gets-a-red-card-for-neurological-care-286 (2015-10-30)
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  • 28.2.2013 Latest press release from our campaign centre - New Web Site
    lists with the huge deficits that exist in neurorehabilitation services for people living with the effects of car crashes brain tumours strokes and a range of other serious conditions what you are left with is suffering on a monumental scale in every town and parish the length and breadth of Ireland much of it avoidable We need urgent action to prioritise the development of better services both in hospital and the community for people with neurological conditions Consultant neurologist Professor Orla Hardiman said that the long delays are not acceptable either to doctors or the population at large particularly as Ireland prepares to host the European Month of the Brain in May this year as part of its EU presidency Ireland will host a major Europe wide conference which will include a focus on how our health system manages diseases of the brain She notes that to a large extent the solution in reducing waiting lists for neurology lies not in increased funding for services but through reorganisation of what s already there We don t need more money we just need to be cleverer about the way we deliver the services people need There are many barriers and blocks historical practices and poor organisational structures that reduce the effectiveness of existing services she declared In tackling service deficits it s more important to look at the quality of services that people are getting than the length of waiting lists If patients are seen quicker but are just getting a yellow pack service that s no good either The waiting list figures emerged a week after the NAI launched its Neurorehabilitation Manifesto to highlight the fact that whilst an estimated 150 000 out of some 700 000 people living with neurological conditions in Ireland require ongoing rehabilitation services across large swathes of the country are fragmented patchy or non existent Existing services provided by not for profit organisations continue to endure swingeing cutbacks of up to 25 in some cases forcing the downgrading and closure of vital community programmes countrywide Mr Macey said that neurorehabilitation services in Ireland are recognised to be the worst in Europe And even if the improvements being sought were implemented they would still be worse than those in any other European country with the exception of the UK For example we currently have 7 consultants to serve acute neurorehabilitation needs across the whole country But even if we had 50 we would still have the lowest number per capita in Europe with the exception of the UK And if it increased to 150 we would still be behind countries like Estonia Latvia Czech Republic Croatia and Serbia In other words what we are really aspiring to is not to have services that any country could be proud of or even services that are mediocre but to be the second worst country in Europe for neurorehabilitation An NAI survey of people across the spectrum of neurological conditions has also found that the vast majority are not

    Original URL path: http://www.nai.ie/go/campaign_centre/press/28-2-2013-latest-press-release-from-our-campaign-centre (2015-10-30)
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  • Latest Press Release from our Campaign Centre 20.2.2013 - New Web Site
    150 000 out of some 700 000 people living with neurological conditions in Ireland require ongoing rehabilitation services across large swathes of the country are fragmented patchy or non existent This study highlights the scandalous absence of services for people whose lives have been saved but whose quality of life is being virtually ignored after they leave hospital Being in a car crash having a stroke or being diagnosed with MS can have a devastating impact both physically and psychologically Our health service can t just exist to patch patients up and then wash its hands of them We have to help people get back as much of their lives as possible after they are struck by neurological conditions The biggest deficits recorded in the survey were in neuropsychology services which each year are required by around 50 000 people with neurological conditions nationwide However just 20 neuropsychologists are currently in post for the entire country when the number required is around three times that Principal Clinical Neuropsychologist at Beaumont Hospital Dr Niall Pender said that patients missing out on vital psychological treatment are suffering unnecessarily and this will have a serious impact on their functional ability employment possibilities and education Neuropsychologists work across the lifespan and work with children and families following brain injury and return to school They work in facilitating diagnostics and measuring cognitive changes following injuries and illnesses In later life they are a necessary part of a memory clinic in assisting the diagnosis of dementia There are other specialist roles in the pre surgical assessment of epilepsy and in the assessment of mental capacity he added Mr Macey said that neurorehabilitation services in Ireland are recognised to be the worst in Europe And even if the improvements being sought were implemented they would still be worse than those in any other European country with the exception of the UK For example we currently have 7 consultants to serve specialist neurorehabilitation needs across the whole country But even if we had 50 we would still have the lowest number per capita in Europe with the exception of the UK And if it increased to 150 we would still be behind countries like Estonia Latvia Czech Republic Croatia and Serbia In other words what we are really aspiring to is not to have services that any country could be proud of or even services that are mediocre but to be the second worst country in Europe for neurorehabilitation NAI Development Manager Mags Rogers added that it was important to understand that six successive years of HSE cuts to disability funded not for profit organisations continue to have a disproportionate impact on people with neurological conditions Ireland relies on these not for profit groups to provide specialised neurological care and rehabilitation We just don t have the framework of State services that other countries take for granted and these organisations have stepped in to meet the huge unmet need She said that despite the fact that the Government

    Original URL path: http://www.nai.ie/go/campaign_centre/press/press-release-1 (2015-10-30)
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  • Download our Factsheet - New Web Site
    Download our Factsheet print version send to a friend share on facebook Our factsheet provides a list of facts and figures on living with a neurological condition in Ireland Download your copy here Attached Documents Factsheet NAI A4 pdf 475 kB Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and Newsletters Training Links Glossary Membership List of Members Becoming a

    Original URL path: http://www.nai.ie/go/campaign_centre/press/download-our-factsheet (2015-10-30)
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