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  • 21.4.2015 NAI statement on funding to local neurological charities in the lead up to Carlow Kilkenny bi-election - New Web Site
    000 Irish people with neurological conditions such as stroke dementia and multiple sclerosis were facing closure or the loss of vital frontline services due to the decision by the Minister for the Environment not to renew existing funding to ALL the neurological charities which were in receipt of funding under the SSNO scheme to support national voluntary organisations As the Government prepares to hold a bi election in Carlow Kilkenny people with neurological conditions in these counties face the loss of vital supports and services as these charities face severe cuts and in some cases the complete closure of operations Carlow Kilkenny is a region that is already poorly resourced with two neurologists serving the entire South East region with no dedicated multidisciplinary team in place People with neurological conditions in the Carlow Kilkenny have long campaigned for better services and with the potential loss of funding to local neurological charities this June they feel their needs are being further ignored by Government Minister Alan Kelly announced a temporary extension of funding to June 2015 The organisations involved have since been subjected to two separate reviews one carried out by Pobal and another joint review by his own Department and the Department of Health and both have failed to announce any decision to date The Minister has refused to meet with umbrella groups including the Neurological Alliance of Ireland to discuss the issue Magdalen Rogers from the Neurological Alliance of Ireland NAI notes it is hard to escape the conclusion that there is no value placed on these services and the people with neurological conditions and their families who are dependent on them The Neurological Alliance of Ireland are calling for immediate action to extend funding to these organisations given the delay in achieving any progress on this issue since

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/21-4-2015-nai-statement-on-funding-to-local-charities-in-the-lead-up-to-carlow-kilkenny-bi-election (2015-10-30)
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  • 1.4.2015: NAI continues to highlight the SSNO funding crisis and the impact on vital supports for people with neurological conditions and their families - New Web Site
    relation to SSNO funding Mr O Toole drew particular attention to the impact on neurological charities all twelve neurological charities which applied for the funding were turned down last June http www irishtimes com opinion fintan o toole the crisis is over so when does the cruelty stop 1 2159054 The NAI is continuing its campaign to highlight the impact on the twelve member organisations which lost vital funding under the SSNO funding scheme last June The funding was temporarily restored for a one year period but the organisations are facing the same situation in two months time because no decision has been made on two appeals processes in relation to the scheme The first appeals process took place last August and we are aware that the outcome was available to the Minister for the Environment as early as October 2014 The outcome of this appeal has not been announced Meanwhile the twelve neurological organisations were then required to submit to a second appeals process in January 2015 with a decision promised by the end of March It is now the beginning of April and there has been no communication to the NAI The NAI wrote to all TD s

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/1-4-2015-nai-continues-to-highlight-the-ssno-funding-crisis-and-the-impact-on-its-membership (2015-10-30)
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  • 5.3.2015 PRESS RELEASE People with neurological conditions face closure of vital services - New Web Site
    with neurological conditions and their families once again face the loss of vital services and the closure of the Neurological Alliance of Ireland the single umbrella body representing the voice of the over 700 000 people who are living with neurological conditions in this country Ireland s neurological care services are historically underdeveloped and underresourced with long waiting lists for diagnosis and treatment and the significant lack of neurorehabilitation services which would be taken for granted in other developed countries Irish people are critically dependent on the services provided by charities and the loss of funding under this scheme represents the loss of over 600 000 to an already struggling and underfunded neurological care service in this country Minister Alan Kelly announced a temporary extension of funding to June 2015 The organisations have since been subjected to two separate reviews one carried out by Pobal and another joint review by his own Department and the Department of Health and both have failed to announce any decision to date The Minister has not responded to requests from the umbrella organisation representing these groups the Neurological Alliance of Ireland to meet with him to discuss the situation Mags Rogers of the Neurological Alliance of Ireland the national umbrella of neurological charities said today It is now the beginning of March and the charities affected have no choice but to put committed and experienced staff on protective notice and explain to vulnerable people with neurological conditions and their families that once again they face the loss of critical services such as counselling helpline support and home supports to enable people to stay out of hospital and in their own communities Given the delays and lack of communication with the organisations affected it is hard to escape the conclusion that there is no value

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/5-3-2015-press-release-people-with-neurological-conditions-face-closure-of-vital-services (2015-10-30)
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  • 14.1.2015 UK Neurological Alliance launches vital report on neurological services - New Web Site
    patient experience survey The report identifies significant variation in the quality of the commissioning of neurological services among clinical commissioning groups CCGs Findings of the Report Only 14 7 of CCGs have assessed local costs relating to the provision of neurology services Only 20 4 and 26 2 of CCGs have assessed the number of people using neurological services and the prevalence of neurological conditions within their area respectively Only 33 of CCGs obtain vital feedback from patients in regards to the neurological services they commission These issues have a significant impact on patients care with 58 1 of patients having experienced problems in accessing the services or treatment they need In response the report sets out a number of recommendations including Every CCG should collate up to date and accurate local neurology data underpinned by routine and rigorous assessments of the prevalence of neurological conditions and of the number of people using neurological services locally All CCGs should ensure that mechanisms are put in place to encourage and capture patient feedback and input in regards to the quality and development of local neurology services CCGs should work in partnership to identify clinical and research trial opportunities locally and support the appropriate sharing of information on such opportunities with patients How can we use these findings here in Ireland Once again the Neurological Alliance in the UK has produced a quality comprehensive piece of work which addresses many of the issues we experience here in Ireland The findings should be taken on board as the national clinical programme in neurology prepares to launch a national blueprint for neurology services in this country The Neurological Alliance of Ireland carried out its own nationwide survey of the needs and experiences of Irish people with neurological conditions and will be launching a more

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/14-1-2015-uk-neurological-alliance-launches-vital-report-on-neurological-services (2015-10-30)
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  • 3.12.2014 Waiting lists for neurology show a steep rise - New Web Site
    appointment to see a neurologist show another increase to 1 695 up 746 from 949 in May 2014 The figures are representative of an overall increase accross the health service in the number of people waiting more than 12 months for an outpatient appointment NAI is very concerned about the rate of increase in recent months and the fact that we are now a long way from the Government s

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/3-12-2014-waiting-lists-for-neurology-show-a-steep-rise-578 (2015-10-30)
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  • 19.11.2014 Latest e zine to political representatives on issues affecting Irish people with neurological conditions - New Web Site
    Get Involved Press Political Support 19 11 2014 Latest e zine to political representatives on issues affecting Irish people with neurological conditions print version send to a friend share on facebook Check out our latest e zine for political representatives highlighting key issues affecting Irish people with neurological conditions Download here Quick Links About Us Aims What We Do Board Staff Resources NAI Documents Guidance Policy Standards Annual Reports and

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news/19-11-2014 (2015-10-30)
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  • Latest News - Page 2 - New Web Site
    decision leaves neurological charities in crisis All 11 neurological organisations receiving support for vital community services in areas such as motor neurone disease stroke MS migraine and dementia have lost their funding under a Department of the Environment scheme for voluntary organisations administered by Pobal read more 1 5 2014 NAI asks local election candidates to pledge their support for neurological issues The NAI is inviting candidates for the upcoming local elections to pledge their support for issues affecting the over 700 000 Irish people living with neurologial conditions read more 9 4 2014 NAI launches campaign for upcoming local elections Local elections will take place nationwide in May 2014 Why are local elections important for people with neurological conditions and their families Individual candidates and the parties they represent pay close attention to issues raised in the run up to the local elections read more 31 3 2014 NAI welcomes news of long awaited implementation group for national neurorehabilitation strategy The NAI welcome the news that a national implementation group has been established for the National Policy and Strategy for the Provision of Neurorehabilitation Services in Ireland read more 24 3 2014 RTE programme raises the debate on neurorehabilitation The Late Debate Programme on RTE radio 1 held a debate during National Brain Awareness Week on Ireland s neurorehabilitation services read more 12 3 214 Help us make sure report findings don t sit on a shelf Yesterday NAI launched the findings of its national survey Living with a Neurological Condition in Ireland The report shows the drastic impact of contiuning underinvestment in neurology and neurorehabilitation services on Irish people with neurological conditions and their families read more 11 3 2014 Press release shows shocking impact on cuts on people with neurological conditions NAI survey highlights shocking neurological service

    Original URL path: http://www.nai.ie/go/campaign_centre/latest_news?page=2 (2015-10-30)
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  • Ongoing campaign for Neurorehabilitation Services - New Web Site
    Neurorehabilitation Manifesto in the Mansion House Dublin on 20th February 2013 Our manifesto calls for for urgent action by the Government to address the ongoing crisis in Ireland s neurorehabilitation services 5 out of 6 people who need to cannot access specialist rehabilitation The Government published a national framework for neurorehabilitation services in 2011 but so far no funding has been provided to implement it At this event NAI also launched its national survey on access to neurorehabilitation This survey clearly highlighted the huge gaps in neurorehabilitation services with a significant percentage of people unable to access essential rehabilitation supports See below to download a copy of the manifesto survey results and press release What action is NAI taking to promote the development of neurorehabilitation services 1 NAI is part of a steering group which includes the Department of Health and HSE and which is responsible for the implementation of the national neurorehabilitation strategy Work is ongoing to develop an implementation plan to guide local community health organisations and acute hospitals around the implementation of the national neurorehabilitation strategy and NAI will continue to update its members on the progress of this group 2 NAI is a member of the working group for the national clinical programme for rehabilitation medicine which provides a model of care guidelines and pathways for the development of specialist rehabilitation services The model of care is now open for consultation to read more click here The detailed NAI submission to the model of care can be requested by e mailing 3 NAI continues to advocate for the development of neurorehabilitation services including through ongoing briefings and communications with political representatives How can I stay up to date on whats happening Check out our latest news section and Facebook page for regular updates on NAI activities

    Original URL path: http://www.nai.ie/go/campaign_centre/nai_campaigns/neuro-rehabilitation (2015-10-30)
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