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  • 9.4.2014 Neurological Alliance UK New Report to Drive Neurological Service Improvement - New Web Site
    UK outlines a set of key tests for the reformed health and social care systems ability to achieve improvements in neurological services The 5 key tests are as follows 1 Neurological conditions are proportionately prioritised at a national level 2 Neurological services are explicitly represented in the nationally set health and social care accountability frameworks 3 NICE quality standards clinical guidelines and support for commissioners have been developed covering the range and breadth of neurological conditions 4 There are nationally collated reliable consistent and useful data on all neurological conditions services and outcomes 5 Improvements to neurological services are being incentivised through provider payment and incentive schemes The report outlines specific recommendations including 1 ensuring that neurological conditions are reflected in the NHS outcomes framework and in adult social care outcomes 2 Taking steps so that service providers are commissioners are incentivised to improve neurological outcomes 3 NICE clinical guidelines and quality standards to reflect the full range of neurological condiitons 4 Expansion and resourcing of the neurological minimum dataset There have been a number of recent developments directly aimed at improving neurological services in the UK including a appointment of a national clinical director for neurological conditions b establishment of a strategic clinical network to cover neurological conditions dementia and mental health c launch of the first neurological minimum dataset for England This report by the UK Neurological Alliance once again provides important learning in an Irish context Though the structures and mechanims of health and social care services are very different in both countries the need to identify and improve outcomes for people with neurological conditions ensure neurological services are prioritised at national level and put in place standards and guidelines to improve neurological care services are common requirements we share here in Ireland You can download the

    Original URL path: http://www.nai.ie/go/news/9-4-2014-neurological-alliance-uk-new-report-to-drive-neurological-service-improvement (2015-10-30)
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  • 9.4.2014 NAI launches campaign for upcoming local elections - New Web Site
    attention to issues raised in the run up to the local elections By putting neurological issues on the agenda for the local elections the NAI aims to raise awareness of these issues both at local and national level As a voter what can you do Download our postcard below which gives voters a series of questions to ask local election candidates when they come to their door Attached Documents Local

    Original URL path: http://www.nai.ie/go/news/9-4-2014-nai-launches-postcard-for-upcoming-local-elections (2015-10-30)
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  • 7.4.2014 Half Suffer Depression or Anxiety After Stroke but just one in ten get psychological services - New Web Site
    none at all There are over 50 000 people living with the effects of stroke in Ireland and these studies paint a grim picture of their unmet physical and emotional needs after hospital discharge with psychological services in particular being virtually non existent said Irish Heart Foundation Head of Advocacy Chris Macey The full emotional impact of stroke can be every bit as devastating as the physical effects yet service levels provide no recognition of that reality whatsoever The fact is that hospital based services have improved beyond recognition in the last three years thanks to a National Stroke Programme that has significantly reduced death and permanent severe disability against demographic and international trends But community rehabilitation services have not improved at all We know that whilst up to 414 million a year is spent by the State on nursing home care for stroke survivors less than 7 million is spent on the vital community rehabilitation services that can keep people living in their homes It is hard to escape the conclusion from these studies that after their hospital treatment many stroke patients are being abandoned to their fate back in their communities or in nursing homes where they get no rehabilitation unless they pay for it themselves In its preliminary results the ASPIRE S survey also found that 52 of survivors were moderately to severely emotionally distressed six months after their stroke whilst 57 experienced cognitive impairment with a higher rate being recorded among women The National Survey which looked at the full personal social and financial effects of stroke in Ireland found a significant impact on close personal relationships with 42 saying the condition had a profound impact on their relationship This was mainly due to feelings of dependency personality changes tension and problems with intimacy were described by our respondents as affecting relationships Life after stroke isn t just about how people directly affected react to the profound instant and irreversible change in their lives It s about how society reacts and what help is provided to enable people to maximise their quality of life Right now Ireland is falling far short even of a minimum moral obligation to people trying to rebuild their lives in the aftermath of this devastating condition Mr Macey said that in addition to the human benefits there is growing evidence that it is cheaper to provide community services for stroke survivors well than not well enough For example ESRI research funded jointly by the IHF and HSE to be completed by the summer is likely to show that initiatives such as Early Supported Discharge where stroke survivors get the rehabilitation services they need in the community cost less and provide better quality of life outcomes than keeping them in hospital In the wake of the new studies the Irish Heart Foundation is urging speedy action from the health authorities to acknowledge the cost effectiveness of stroke rehabilitation and to ensure that service improvements don t just focus on physical recovery after

    Original URL path: http://www.nai.ie/go/news/7-4-2014-half-suffer-depression-or-anxiety-after-stroke-but-just-one-in-ten-get-psychological-services (2015-10-30)
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  • 7.4.2014 Survey on Stroke Survivors published today once again highlights the lack of neurorehabilitation services - New Web Site
    in 2013 in showing that many people cannot access services which are crucial to their treatment and recovery of function following stroke The survey was funded by the National Disability Authority and was carried by RCSI and the Irish Heart Foundation found that only 11 of stroke survivors were able to access psychological services just half had access to speech and language therapy one in three survivors who needed physiotherapy got none at all The findings come just a few weeks after the Neurological Alliance published the results of its national survey Living with a neurological condition in Ireland which showed significant difficulty in access critical services and a deteriorating situation from three years ago Worryingly the findings from the Irish Heart Foundation research launched today show even greater problems in accessing therapy services that those found in the NAI national survey on neurorehabilitation launched in 2013 This survey found that one quarter of people with neurological conditions could not access physiotherapy compared to half in today s survey The NAI neurorehabilitation survey found that 40 could not access psychological services for stroke survivors only 11 were able to access these supports The results once again point to the urgent

    Original URL path: http://www.nai.ie/go/news/7-4-2014-survey-on-stroke-survivors-once-again-highlights-the-lack-of-neurorehabilitation-services (2015-10-30)
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  • 3.4.2014 Local Government reform as an opportunity: Key theme of Disability Federation of Ireland conference - New Web Site
    inclusive policy making enhances transparency and accountability and builds civic capacity He added I wish you well in your discussions today and your endeavors in the future to promote an understanding of the challenges faced by people with disabilities and how we can move towards a society where everyone can become an active participant in decision making affecting their lives and their communities and I will do my utmost to make this become a reality Speaking at today s conference John Dolan CEO Disability Federation of Ireland said Austerity is the order of the day from our leaders in Europe We cannot afford what is being routinely referred to as a lost decade Tell that to the parents of a young child tell that to a ten year old with muscular dystrophy and tell that to a daughter caring for her elderly father He continued This local government reform could well become the place where people with disabilities and their organisations are given the support and confidence to move forward the creation of inclusive communities and participative local government The publication of the Report is not the end but the beginning The signal and leadership has to come from Government through its actions on foot of this welcome package of reform Mr Dolan concluded The recommendations arising from the Citizen Engagement Report offer new and exciting opportunities for engagement It remains to be seen how each community will endeavour to make that engagement a reality However if key stakeholders in each community are working together and ensuring that the voices of all are sought out and heeded the needs of all citizens including people with disabilities will be reflected in local initiatives Mr Dolan concluded People with disabilities in Ireland continue to experience significantly poorer social and economic outcomes compared

    Original URL path: http://www.nai.ie/go/news/3-4-2014-local-government-reform-as-an-opportunity-key-theme-of-disability-federation-of-ireland-conference (2015-10-30)
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  • 2.4.2014 WHite Paper on Universal Health Insurance Published - New Web Site
    conditions One of the concerns will be access to new drug treatments and therapies which are coming down the line many of these drugs and procedures are costly and how they will be met by providers The White Paper states that Core services such as health and wellbeing services long term mental healthcare and social and continuing care services will continue to be provided by the public health system and

    Original URL path: http://www.nai.ie/go/news/2-4-2014-white-paper-on-universal-health-insurance-published (2015-10-30)
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  • 31.3.2014 NAI welcome news of an implementation group for the national neurorehabilitation strategy - New Web Site
    been campaigning since then for a comprehensive implementation plan to put the recommendations into effect Last year the NAI wrote to Minister Kathleen Lynch following disturbing comments that suggested that a specific implementation plan would not be developed In their correspondence the NAI outlined in detail the need for an implementation plan to co ordinate the work of the various agencies tasked with putting in place the recommendations of the

    Original URL path: http://www.nai.ie/go/news/31-3-2014-nai-welcome-news-of-an-implementation-group-for-the-national-neurorehabilitation-strategy (2015-10-30)
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  • 25.3.2014 NAI's sincerest sympathies on the passing of Nicky Mc Fadden TD - New Web Site
    diagnosed Deputy McFadden had lent her support to efforts to promote awareness of this neurological condition She was also involved in highlighting the work of the NAI to improve services and supports for all those affectd by neurological conditions and supported our Red Card campaign for better neurological care in 2013 All who came into contact her will remember a warm engaging public representative who did her utmost to represent

    Original URL path: http://www.nai.ie/go/news/25-3-2014 (2015-10-30)
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