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  • IMPORTANT: Letter to your TD on Loss of Disability Funding - Migraine
    will mean the regional development work will be lost which will have a big impact both on the quality of services provided to migraine sufferers and also on the increased demand which will be placed on other agencies at a local level 25 other disability and neurological organisations also saw their funding revoked in the allocations for the 2014 2016 round of the SSNO scheme at a total annual loss of 1 2 million I am calling on you to enact appropriate measures to restore this funding to the affected organisations The cutbacks come on top of and further compound the devastating effects of ongoing cuts to both people with disabilities and their organisations over the last number of years The decision to cut the SSNO funding goes against the implementation mechanisms of the National Disability Strategy NDS put in place by Government itself showing how a lack of joined up thinking impacts negatively on communities and the services available to them Government now needs to demonstrate its ambition and commitment to people with disabilities by protecting and investing in this sector I am urging you to identify a new stable funding stream which will safeguard the restoration of SSNO grants to those organisations which lost them It is unacceptable that so many community based disability focused services are forced to shut some or all of their activities It is also extremely important that a Senior Minister for Disability Inclusion is appointed allowing for more progressive action on disability issues the safeguarding of core disability services across government departments and enhanced implementation of the NDS This issue requires immediate and resolute action and as my representative in Government I call on you to ensure that this happens Yours sincerely Home homeslider IMPORTANT Letter to your TD on Loss of Disability Funding IMPORTANT Letter to your TD on Loss of Disability Funding 30th June 2014 Dear friends For the past six years the regional work of the Migraine Association of Ireland MAI has been funded by the Department of the Environment and Local Government through a scheme to support national organisations which provide frontline services to disadvantaged groups For the first time the Migraine Association of Ireland and 25 other disability groups have been excluded from this scheme without any prior warning due to a lack of strategic fit This is a very serious situation for MAI and the other disability groups as we have already suffered a 20 cut in our core HSE funding over the past five years As the Dáil is breaking up next week I would urge you to fill in the letter below and email it to your local TDs as soon as possible We will keep you informed on further developments Every good wish Patrick Little CEO Letter to TDs Public Representatives Click here to download letter to TDs and public representatives Dear Sir Madam On 30th June the Migraine Association of Ireland MAI lost 30 000 through the Scheme to Support National Organisations SSNO

    Original URL path: http://www.migraine.ie/important-letter-to-your-td-on-loss-of-disability-funding/ (2014-07-21)
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  • Please Donate to MAI by Text Message!
    Chronic Tension Headache Chronic Transformed Migraine Medication Overuse Headache Other Primary Headache Sinus Headache Benign Exertional Headache Ice Cream Headache Caffeine Withdrawal Headache Tension Headache Cluster Headaches THE MIGRAINE Association Of Ireland Providing information support and reassurance to migraine sufferers and those with other headache disorders THE MIGRAINE Association Of Ireland Providing information support and reassurance to migraine sufferers and those with other headache disorders Latest News Latest News and Research from the Migraine World 17th July 2014 Read our submission on chronic migraine and medical card eligibility 14th July 2014 Loss of funding may cost MAI one third of staff 26th June 2014 Take this important survey on chronic migraine and medical card eligibility View All News Become a Member Sign up or Log in Events Upcoming Events from the MAI No events View All Events Home homeslider Please Donate to MAI by Text Message Please Donate to MAI by Text Message 22nd January 2014 Please text MIGRAINE to 50300 to donate 2 to the Migraine Association of Ireland Some providers apply VAT which means a minimum of 1 63 will go to the Migraine Association of Ireland Home homeslider Please Donate to MAI by Text Message Please Donate to MAI by Text Message 22nd January 2014 Please text MIGRAINE to 50300 to donate 2 to the Migraine Association of Ireland Some providers apply VAT which means a minimum of 1 63 will go to the Migraine Association of Ireland Donate Now Will you help us to continue our work We are only too aware of the devastating impact migraine can have upon a person s life There are half a million migraine sufferers in Ireland and we cannot reach them all without your support Please note that no fundraised money goes towards salaries Below are some of the

    Original URL path: http://www.migraine.ie/please-donate-to-mai-by-text-message/ (2014-07-21)
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  • Managing Migraine - Migraine
    the park at lunchtime Don t overdo the exercise as this can act as a trigger Food and Drink Low blood sugar hypoglycaemia can trigger attacks so try not to go longer than five waking hours without eating Slow release foods are also advisable for example cereals bananas pasta potatoes Drink plenty of fluids to avoid dehydration The average person needs between one and two litres of water per day In warm weather or when exercising you may need more Low blood sugar levels can also trigger attacks after exercise Limit your intake of drinks containing caffeine or alcohol If you currently drink a lot of either of these reduce your intake gradually to avoid withdrawal symptoms Working Conditions If screen flicker is a trigger make sure to take regular breaks Use screens of 100Hz or above Even better are plasma screens which have no flicker at all Work related stress can be improved by managing your time properly taking proper breaks and by eliminating unrealistic targets Ensure that ventilation indoors is good and try to keep rooms at a constant temperature Avoid large reflective surfaces such as plain white walls break them up with plants pictures etc Take care with your posture at work especially to avoid tension in the neck and shoulders Ensure that your working environment is as ergonomically designed as possible to avoid unnecessary twisting stretching and bending Routine The migraine brain likes routine so it is a good idea to maintain regular schedules Some people note a rise in migraine occurrence at weekends or when on holiday often due to a break with daily routine In general sticking to eating resting exercise and sleep routines is a good idea for migraineurs even at weekends Home homeslider Managing Migraine Managing Migraine 6th August 2013 Managing Migraine Migraine Management Tips Keep a Migraine Diary A migraine diary helps to identify potential migraine triggers establish patterns to attacks and demonstrate the impact of the condition to GPs or other health professionals Download a Migraine Diary Here Sleep is still one of the best ways to get through an attack though not always possible Lying motionless in a quiet dark room for a period is normally helpful General pressure perhaps in the form of a bandage has also been shown to be effective especially if applied to the temporal artery Acupressure and self massage are simple techniques that you can learn which may also be helpful when applied to the head Many people find that the application of ice or cold water is a useful natural pain reliever Others find that heat can be very beneficial whether in the form of a hot wet towel a warm bath or even through heating other parts of the body If you spend a lot of time in bright environments or if you drive a lot a good pair of sunglasses is a must Wrap arounds keep out more light than ordinary glasses while high UV resistance and polarised lenses are other

    Original URL path: http://www.migraine.ie/managing-migraine/ (2014-07-21)
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  • Migraine in the Workplace - Migraine
    educational programme on migraine management If you are an employer why not take part in this service With 92 of Irish migraineurs saying that attacks affect their performance at work it makes sense that any employer would want to take steps to limit the affect that migraine can have on their workforce and on their business The aim of the service is to equip migraineurs with the tools needed to help reduce the effect of migraine on their work and to provide the employer with training on how to create a migraine friendly workplace Almost 15 of your workforce could be migraineurs By registering for our outreach service not only can you help this large group of employees but you can help your business by decreasing sick days and ensuring high levels of job satisfaction What does an outreach event entail Generally we would discuss migraine management causes symptoms diagnosis treatment medications etc The aim of these presentations is to improve understanding of the condition The day can be tailored to suit your needs although the majority of employers prefer a lunchtime event This might take the form of A short PowerPoint presentation followed by a question and answer session OR A migraine information stand in a common area attended by an MAI representative These events are free of charge although we may ask for a contribution towards travel expenses For more information or to request a visit please contact the MAI on 1850 200 378 or email estelle migraine ie Benefits to employees Increased job satisfaction Better health and well being Better social and family life Benefits to employers Increased productivity Less absenteeism Positive workplace environment Increased understanding about migraine improved migraine management More content and productive workforce Home homeslider Migraine in the Workplace Migraine in the Workplace 6th August 2013 Migraine in the Workplace UNDERSTANDING MIGRAINE Migraine is a real medical condition just like diabetes epilepsy or asthma It is not just a headache Migraine has been found to have a greater impact on quality of life than conditions such as heart disease and diabetes According to the World Health Organisation migraine is the 7 th ranking cause of all disease associated disability worldwide A recent study found that people rated migraine pain as worse than root canal treatment and many women say that childbirth is less discomforting Despite this migraine is still under treated and misunderstood especially in the workplace MIGRAINE AT WORK Information for Employers Employees Trade Unions Research by Dr Caoimhin MacMaolain Director of Research at the Law Department TCD An Investigation into the Potential for Migraineurs to be protected by Employment Laws in the European Union Please contact the MAI office if you would like to receive a copy of this paper Can the working environment cause a migraine Migraine is an episodic neurological condition However individual attacks can be triggered by exposure to one or more trigger factors which cause an individual s migraine threshold to be crossed For many people stress can

    Original URL path: http://www.migraine.ie/migraine-in-the-workplace/ (2014-07-21)
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  • Migraine Specialist Clinics - Migraine
    homeslider Migraine Specialist Clinics Migraine Specialist Clinics 6th August 2013 Migraine Specialist Clinics There are five specialist Headache Migraine Clinics in Ireland Beaumont Hospital Dublin Cork University Hospital Cork Dublin Neurological Institute Mater Hospital Dublin St Vincent s Hospital Dublin University Hospital Galway These are public clinics which operate a national service for migraine sufferers To receive an appointment for the Headache Migraine clinic you need to send a letter of referral from your GP to one of the clinics The Clinic Secretary The Headache Migraine Clinic Department of Neurology Beaumont Hospital Beaumont Dublin 9 Ph 01 809 3353 The Clinic Secretary The Headache Migraine Clinic Department of Neurology Cork University Hospital Wilton Cork Ph 021 4922461 The Clinic Secretary The Headache Migraine Clinic Department of Neurology St Vincent s University Hospital Elm Park Dublin 4 The Headache Migraine Clinic Dublin Neurological Institute 57 Eccles Street Dublin 7 Ph 01 8545038 For information on the Migraine Headache Clinic at Galway University Hospital please contact info migraine ie As an alternative to the clinics you can also request your GP to make a private appointment with a neurologist for you Home homeslider Migraine Specialist Clinics Migraine Specialist Clinics 6th August 2013 Migraine Specialist Clinics There are five specialist Headache Migraine Clinics in Ireland Beaumont Hospital Dublin Cork University Hospital Cork Dublin Neurological Institute Mater Hospital Dublin St Vincent s Hospital Dublin University Hospital Galway These are public clinics which operate a national service for migraine sufferers To receive an appointment for the Headache Migraine clinic you need to send a letter of referral from your GP to one of the clinics The Clinic Secretary The Headache Migraine Clinic Department of Neurology Beaumont Hospital Beaumont Dublin 9 Ph 01 809 3353 The Clinic Secretary The Headache Migraine Clinic Department of Neurology Cork

    Original URL path: http://www.migraine.ie/migraine-specialist-clinics/ (2014-07-21)
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  • Read our submission on chronic migraine and medical card eligibility - Migraine
    the direct costs of treatment are small when compared to the huge indirect cost savings that may be made for example by reducing lost working days if resources were allocated to treat headache disorders appropriately 6 Conclusion The focus of the expert panel established by the HSE is on chronic life long and life limiting conditions The MAI believes that Chronic Migraine more than satisfies these criteria and would ask that the panel reflect upon the levels of disability associated with this condition Our position is that Chronic Migraine should merit at least consideration of medical card eligibility and furthermore that an assessment of medical need or impact disability would be more advantageous in determining medical card eligibility than a prioritised set of medical conditions Please do not hesitate to contact the MAI for further comment or clarification ENDS For Reference Jenny Costello Communications Officer with the MAI Email jenny migraine ie Telephone 01 8941280 1 Disability adjusted life years DALYs for 291 diseases and injuries in 21 regions 1990 2010 a systematic analysis for the Global Burden of Disease Study 2010 Lancet 2012 Dec 15 380 9859 2197 223 2 World Health Organisation Headache Disorders Fact Sheet No 277 October 2012 3 An Investigation into the Potential for Migraineurs to be Protected by Employment Laws in the European Union Dr Caoimhin MacMaolain Director of Research at the Law Department Trinity College Dublin 4 Shapiro R and Goadsby P 2007 The long drought the dearth of public funding for headache research Cephalalgia 27 991 994 5 Shapiro R and Goadsby P 2007 The long drought the dearth of public funding for headache research Cephalalgia 27 991 994 6 World Health Organisation Headache Disorders Fact Sheet No 277 October 2012 Home Latest News Read our submission on chronic migraine and medical card eligibility Read our submission on chronic migraine and medical card eligibility 17th July 2014 Migraine Association of Ireland Submission on the Development of a Policy Framework for Medical Card Eligibility to Take Account of Medical Conditions The Migraine Association of Ireland The Migraine Association of Ireland MAI exists to provide information support and reassurance to migraine sufferers and those affected by primary headache disorders The Association aims to empower people and optimise quality of life by creating awareness and promoting education of these conditions encouraging further research and seeking improved services for those affected The MAI is a member of the Neurological Alliance of Ireland the Disability Federation of Ireland the World Headache Alliance and the European Headache Alliance Overview of Submission The MAI would like to submit Chronic Migraine as a condition which should merit medical card eligibility Migraine is the 7 th ranking cause of all disease associated disability worldwide 1 Awareness needs to be raised amongst legislators employers and society generally about the debilitating nature of chronic migraine and the social and economic burden of headache According to the World Health Organisation lack of knowledge among health care providers is the principal clinical barrier to effective

    Original URL path: http://www.migraine.ie/read-our-submission-on-chronic-migraine-and-medical-card-eligibility/ (2014-07-21)
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  • Loss of funding may cost MAI one third of staff - Migraine
    will mean the regional development work will be lost which will have a big impact both on the quality of services provided to migraine sufferers and also on the increased demand which will be placed on other agencies at a local level 25 other disability and neurological organisations also saw their funding revoked in the allocations for the 2014 2016 round of the SSNO scheme at a total annual loss of 1 2 million I am calling on you to enact appropriate measures to restore this funding to the affected organisations The cutbacks come on top of and further compound the devastating effects of ongoing cuts to both people with disabilities and their organisations over the last number of years The decision to cut the SSNO funding goes against the implementation mechanisms of the National Disability Strategy NDS put in place by Government itself showing how a lack of joined up thinking impacts negatively on communities and the services available to them Government now needs to demonstrate its ambition and commitment to people with disabilities by protecting and investing in this sector I am urging you to identify a new stable funding stream which will safeguard the restoration of SSNO grants to those organisations which lost them It is unacceptable that so many community based disability focused services are forced to shut some or all of their activities It is also extremely important that a Senior Minister for Disability Inclusion is appointed allowing for more progressive action on disability issues the safeguarding of core disability services across government departments and enhanced implementation of the NDS This issue requires immediate and resolute action and as my representative in Government I call on you to ensure that this happens Yours sincerely Home Latest News Loss of funding may cost MAI one third of staff Loss of funding may cost MAI one third of staff 14th July 2014 Loss of funding may cost MAI one third of staff Eleven neurological charities including the Migraine Association of Ireland applied for a Department of Environment funding scheme for voluntary organisations and have received news that their applications were turned down despite many being in receipt of this funding since 2008 The withdrawal of this funding will lead to loss of crucial frontline support services provided by neurological charities Please copy or download the letter below and email it to your public representative on our behalf Letter to TDs Public Representatives Click here to download letter to TDs and public representatives Click here to find your TD Dear Sir Madam On 30th June the Migraine Association of Ireland MAI lost 30 000 through the Scheme to Support National Organisations SSNO This funding was intended to finance national organisations that provide frontline services to disadvantaged groups The explanation given was that the MAI s proposal lacked strategic fit in relation to disadvantage SSNO funding accounts for one third of MAI staffing costs It has allowed us to run a regional development programme across the country to a

    Original URL path: http://www.migraine.ie/loss-of-funding-may-cost-mai-one-third-of-staff/ (2014-07-21)
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  • Take this important survey on chronic migraine and medical card eligibility - Migraine
    disorders Latest News Latest News and Research from the Migraine World 17th July 2014 Read our submission on chronic migraine and medical card eligibility 14th July 2014 Loss of funding may cost MAI one third of staff 26th June 2014 Take this important survey on chronic migraine and medical card eligibility View All News Become a Member Sign up or Log in Events Upcoming Events from the MAI No events View All Events Home Latest News Take this important survey on chronic migraine and medical card eligibility Take this important survey on chronic migraine and medical card eligibility 26th June 2014 Chronic Migraine and Medical Card Eligibility Important Chronic migraine sufferers please take this short HSE survey on medical conditions and medical card eligibility MAKE YOUR VOICE HEARD http www hse ie FeedbackServer fs aspx surveyid 3b2ccfcc8c84e94b44b5a001a51ceed The Government has decided to develop a policy framework for medical card eligibility to take account of medical conditions The HSE established an expert panel to examine the range of medical conditions that should be considered for inclusion in the policy framework They will identify a range of conditions in priority order that would benefit most from medical card eligibility Their focus is on chronic life long and life limiting conditions Contributions are now being sought from the public patient representative groups and professional bodies to inform the work of the panel MAI is going to make a submission to the HSE on chronic migraine and how medical need should be taken into account in the provision of medical cards Please take this short HSE survey list chronic migraine as the condition and have your say Closing date is next Monday 30th June http www hse ie FeedbackServer fs aspx surveyid 3b2ccfcc8c84e94b44b5a001a51ceed Home Latest News Take this important survey on chronic migraine and medical card eligibility Take this important survey on chronic migraine and medical card eligibility 26th June 2014 Chronic Migraine and Medical Card Eligibility Important Chronic migraine sufferers please take this short HSE survey on medical conditions and medical card eligibility MAKE YOUR VOICE HEARD http www hse ie FeedbackServer fs aspx surveyid 3b2ccfcc8c84e94b44b5a001a51ceed The Government has decided to develop a policy framework for medical card eligibility to take account of medical conditions The HSE established an expert panel to examine the range of medical conditions that should be considered for inclusion in the policy framework They will identify a range of conditions in priority order that would benefit most from medical card eligibility Their focus is on chronic life long and life limiting conditions Contributions are now being sought from the public patient representative groups and professional bodies to inform the work of the panel MAI is going to make a submission to the HSE on chronic migraine and how medical need should be taken into account in the provision of medical cards Please take this short HSE survey list chronic migraine as the condition and have your say Closing date is next Monday 30th June http www hse ie

    Original URL path: http://www.migraine.ie/take-this-important-survey-on-chronic-migraine-and-medical-card-eligibility/ (2014-07-21)
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