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  • Working on a Cure - Arthritis Ireland
    facebook At Arthritis Ireland we fervently believe that finding a cure for arthritis is possible and we are working to do just that Treatments for arthritis have improved enormously ove r the last number of years Thirty years ago rheumatologists waiting rooms were filled with people in wheelchairs Today that is no longer the case Treatments have improved over time and the outlook for a person diagnosed with arthritis in 2014 is much brighter than it used to be But there is still a long way to go In the last six years we have gathered a research fund of 2 5m made up of private donations community fundraising corporate sponsorship and grants to create two research centres Working together these two world class centres will support and enhance all rheumatology research efforts throughout the country and position Ireland at the forefront of rheumatology internationally Although this represents a major step forward the true val ue of these centres will only be realised when we see the results of this research leading to new discoveries when we unearth new causes of arthritis develop new treatments and find a cure The first of these Chairs of Rheumatology was established in UCD in 2013 with the appointment of Professor Gerry Wilson Recruitment is underway for the second Cha ir which will be established in Trinity College Dublin this year Over the next three years Arthritis Ireland will build an institute of rheumatology that covers the entire country Once the Chairs are established we will create a national bio bank of blood and tissue samples This will give our best researchers access to the biological samples that are required to make new important discoveries Click here to visit our research hub Arthritis Ireland on Facebook Arthritis Ireland on Twitter Arthritis Ireland on YouTube

    Original URL path: http://www.arthritisireland.ie/go/about_us/what_we_do/working_on_a_cure (2016-02-07)
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  • Taking Control - Arthritis Ireland
    than 3 500 people with arthritis have reaped the benefit So what exactly is self management Put simply self management is about knowing and using tips and techniques to help you live as full a life as possible Our six week Living Well with Arthritis covers a range of areas such as dealing with pain fatigue diet exercise negative emotions and medication The programme has been extremely successful In an evaluation conducted by Arthritis Ireland over three years participants experienced major improvements across a wide range of areas As well reducing pain people reported less fatigue and improvements to how they manage their arthritis They take regular exercise and have increased their knowledge of their condition The cost to Arthritis Ireland of delivering the programme works out at 60 per person but in turn healthcare system costs are reduced In our study patients reported a 25 reduction in visits to GPs fewer emergency department visits fewer visits to the hospital clinic and fewer overnight hospital stays In fact over the last seven years every 1 spent on our self management programme has resulted in a 4 saving for the HSE The programme is supported by an annual HSE grant and funds raised through the Arthritis Ireland branch network Click here to visit our self management hub Informing to enlighten G athering knowledge and learning about your arthritis puts you in a position of control Becoming an expert on arthritis its symptoms the treatments available and how it can affect your life is the first step toward becoming a good self manager In 2013 we reached a total of almost 100 000 people with booklet orders and downloads and more than 133 000 people through our website No matter what age you are or where you live we try to make the information you need accessible to you We provide information on a wide variety of issues and through a range of different channels including our website information booklets in rheumatology clinics through our helpline and at events in local communities Click here to visit our information hub Listening to comfort A s well as providing information services such as the National Helpline also provide callers with vital emotional support The helpline volunteers who are all living with arthritis are there to listen no matter how big or small the issue In 2013 they helped 2 260 callers But it s not just about the number of calls Calls often last for more than half an hour as many callers require significant time to discuss the issues they are facing Every day our helpline volunteers take calls on a whole range of topics from the more straightforward disease and treatment information requests to the more complex distress calls Call our helpline today on 1890 252 846 or email Motivating to get moving A crucial part of being a good self manager is taking regular exercise As well as reducing the pain and inflammation of arthritis being active improves joint support and

    Original URL path: http://www.arthritisireland.ie/go/about_us/what_we_do/taking_control (2016-02-07)
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  • Supporting Children - Arthritis Ireland
    Our Work What We Do Supporting Children We are supporting children with arthritis together print version send to a friend share on facebook Arthritis affects children too There are more than 1 000 children living with juvenile arthritis JA in Ireland Children with JA experience the same pain as adults but it affects their lives in very different ways Little things like playing in the yard with classmates carrying a schoolbag or doing homework become painful and arduous tasks that ultimately cause children with JA to feel isolated and alone But JA does not just affect the child in question their parents and siblings find it extremely difficult too Families want a normal childhood for their child and our JA programme has been specially tailored to help achieve that The JA services that made a big difference in the last two years A dedicated JA Helpline which took almost 500 calls A constant presence in the juvenile arthritis clinic in Our Lady s Children s Hospital Crumlin meeting 35 40 families each week JA Family Days giving support and information attended by 550 parents and children JA Road Trip a confidence building weekend attended by 70 teenagers JA information service available online at www juvenilearthritis ie 5 300 visitors and in print format 7 500 booklets distributed As well as our own services Arthritis Ireland also advocates for better healthcare services for families living with JA We were heavily involved in securing the appointment of two consultant paediatric rheumatologists to Our Lady s Children s Hospital Crumlin Click here to visit our juvenile arthritis hub Arthritis Ireland on Facebook Arthritis Ireland on Twitter Arthritis Ireland on YouTube Arthritis Ireland on Google Plus Arthritis Ireland on LinkedIn Quicklinks Information About Arthritis Treatments Care Self Management Arthritis Your Life Booklets Exercise Medical

    Original URL path: http://www.arthritisireland.ie/go/about_us/what_we_do/supporting_children (2016-02-07)
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  • Fostering a Community - Arthritis Ireland
    are bringing a community together print version send to a friend share on facebook The Arthritis Ireland volunteer network is an inspirational group of people who are committed to making a difference in the lives of people with arthritis Over the years the network has grown to include 20 branches and 22 walking groups right around the country with a total of more than 400 dedicated volunteers giving up their skills and time These groups exist to transform the lives of people with arthritis in their own communities They do this by providing local access to our support services and education programmes They are the local voice of Arthritis Ireland raising awareness in the media and among politicians of the issues affecting people with arthritis in their area The branches also fundraise 100 of what they raise in their communities is spent there Although our network of volunteers is significant our vision is for more By 2016 we intend to have active support bases in every county in Ireland That means that every community will have a branch of their own with local education programmes walking groups and other exercise classes together with local supports for young people and families living with juvenile arthritis None of this can happen though without one key ingredient the individuals who give up their time to take on these voluntary roles Whether they lead a walking group deliver a course or administer a branch s finances they have dedicated themselves to making a difference in the lives of people with arthriti s in their area Click here to find branches walking groups courses and events in your area Arthritis Ireland on Facebook Arthritis Ireland on Twitter Arthritis Ireland on YouTube Arthritis Ireland on Google Plus Arthritis Ireland on LinkedIn Quicklinks Information About Arthritis Treatments

    Original URL path: http://www.arthritisireland.ie/go/about_us/what_we_do/fostering_a_community (2016-02-07)
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  • Creating Understanding - Arthritis Ireland
    facebook In 2013 we were in the media more than once a day throughout the whole year spreading the message that arthritis is a serious chronic disease and a cause worth supporting Far from self promotion this activity is addressing a major issue Although arthritis is a condition that almost everyone has heard of most people are misinformed about it Every day people with arthritis are wrongly stereotyped Arthritis only affects the elderly It s just a few aches and pains that s part and parcel of getting older Stay in bed and away from exercise if you have arthritis These are just a few examples of the public misconceptions that people with arthritis face We understand that if people with arthritis are to be treated with the respect they deserve these attitudes have to change We are making this change happen by bringing the stories of people living with arthritis into the public consciousness Every year we run numerous media campaigns to achieve this using local and national media and our own publications and resources In 2013 We ran a major TV advertising campaign that reached more than 1 5 million viewers and motivated 150 people a day to get in touch with us for information on arthritis Our PR activity resulted in over 100 pieces in the national media and over 250 in regional publications and radio Our website received over 130 000 visitors Our magazine Big News was sent to over 4 000 people every three months and was present in every rheumatology clinic in the country Our e zine was sent to over 15 000 subscribers every month We had almost 7 500 followers on our social media pages Facebook and Twitter Arthritis Ireland on Facebook Arthritis Ireland on Twitter Arthritis Ireland on YouTube Arthritis Ireland

    Original URL path: http://www.arthritisireland.ie/go/about_us/what_we_do/creating_understanding (2016-02-07)
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  • Fighting for Services - Arthritis Ireland
    for more specialised allied health professionals such as nurse specialists physiotherapists occupational therapists and social workers We have been part of this initiative since its beginning in 2010 and in that time seven new consultant rheumatologists have been appointed including a second consultant paediatric rheumatologist to Our Lady s Children s Hospital Crumlin Furthermore the new appointments are mainly outside the Dublin region making life easier for people in areas which were not previously served by a rheumatologist As well as the improvements in consultant numbers the programme has worked to have 24 specialist musculoskeletal physiotherapists appointed who have so far reduced the orthopaedic and rheumatology waiting lists by 20 000 Medical card scandal 2014 Arthritis Ireland is deeply concerned at the number of people with arthritis who have lost their discretionary medical cards In a survey conducted by the charity 60 of people with arthritis who have or had discretionary medical cards admitted they had been taken away or placed under review At the time of writing we were rolling out a campaign to call on the Government to take action to resolve this issue and urging the HSE to ensure arthritis patients on expensive treatments such as high tech biologic therapies are given medicals cards straight away Click here for more information on medical cards Creating a better working environment In the workplace we are also working to improve the supports available to people with musculoskeletal diseases an umbrella group including arthritis so that they can continue in their jobs or get back to work Work is proven to be good for your health and it is important to people with arthritis both financially and for their quality of life and wellbeing There is also an enormous social cost In Ireland MSDs account for 7 million days in

    Original URL path: http://www.arthritisireland.ie/go/about_us/what_we_do/fighting_for_services (2016-02-07)
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  • Fundraising Heroes - Arthritis Ireland
    get involved in all sorts of activities to help raise much needed funds for us Parachute jumps bake offs vintage tractor runs cycling events mini marathons sponsored sleepovers swimathons the list goes on We never cease to be amazed at the creativity and generosity of those who organise and take part in fundraising events Some take part as a personal challenge others get involved to show support and solidarity with family and friends who live with arthritis Whatever their reasons they have one thing in common every euro they raise means more people with arthritis get the support they need to live well with this painful and debilitating disease Fundraising events also include our Jasper pin campaign to raise funds for our juvenile arthritis programme and our national raffle which supports all of our activities Personal donations account for 12 of our annual income In 2013 Arthritis Ireland recruited over 500 regular monthly donors who give an average of e12 per month By continuing to grow this number in 2014 and beyond this regular income will allow us to plan more effectively and continue to provide the many supports and services available all around Ireland As well as regular monthly donors we have nearly 1 000 friends who pay an annual subscription of e36 and every month we receive generous donations via our website and over the phone Community fundraising accounts for 10 of our annual income This is the income that our dedicated network of branch volunteers raises each year through a variety of activities such as church gate collections coffee mornings and local physical challenges 100 of the funds raised in the community are also spent locally on education programmes and branch events throughout the year Over the next three years we intend to grow our community fundraising

    Original URL path: http://www.arthritisireland.ie/go/about_us/what_we_do/fundraising_heroes (2016-02-07)
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  • Financials - Arthritis Ireland
    on a Cure Taking Control Supporting Children Fostering a Community Creating Understanding Fighting for Services Fundraising Heroes Financials Where Our Money Comes From How we spend money Salaries Guiding Principles for Fundraising Annual Reports AGM 2015 Notice AGM Minutes Articles of Association Summarised Statements Our Staff Governance Board of Directors Affiliated Membership Data Protection Statement Contact Us Home Our Work Financials Financials print version send to a friend share on facebook Our information on finance is broken out across the following sections Where our money comes from How we spend money Salaries Guiding principles for fundraising Annual reports AGM notice AGM minutes Articles of association Summarised statements Arthritis Ireland on Facebook Arthritis Ireland on Twitter Arthritis Ireland on YouTube Arthritis Ireland on Google Plus Arthritis Ireland on LinkedIn Quicklinks Information About Arthritis Treatments Care Self Management Arthritis Your Life Booklets Exercise Medical Cards Other Resources Helpline Let s Talk Arthritis Peer Support Self Management Courses About Self Management Living Well With Arthritis Living Well With Arthritis Online Breaking the Pain Cycle Get Involved Fundraise Mini Marathon Take on a Challenge Donate Leave a Legacy Corporate Fundraising In Your Area All Events Your Local Contacts Your Exercise Groups Your Fundraising Events

    Original URL path: http://www.arthritisireland.ie/go/about_us/financials (2016-02-07)
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